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Original research article here: https://www.nature.com/articles/s41591-020-0965-6

Scroll back to post 26 (page 2) in this thread for a link to the explanation of how noise cancelling headphones work.

Back in 1993 when first diagnosed with hypothyroidism, I was put on a long term dose of 100mcg a day, which was started at 50mcg, increased by 25mcg with 6 weekly testing by my GP until my TSH, T4 and T3 levels were in the middle of the normal ranges. Once that was shown with the final blood...

I got a message left on my answer machine from the local council regarding shielding as well, so I wonder if they have been instructed to do this now that the national shielding programme is being 'paused'. The national 'shielding' calls were definitely outsourced and were call centre based...

My thyroid test at the time included measuring antibody levels, T3 and T4. Although I noticed the itchy throat when I first became bed bound I didn't have the thyroid testing until 18 months after the upper respiratory infection when I finally agreed to see a doctor, so my GP didn't link it to...

My mum insisted I was 'never the same' after getting glandular fever just after my 17th birthday (she insisted the GP come to the house and take the blood to test for this from my bed as I was so ill, so it was a confirmed diagnosis). After 'recovering' from the PVFS I did continue to need a lot...

So the basic rate of ESA is £74.30 a week, for disabled, sick and chronically ill people (£58.90 if they are under 25 years old)...Only someone with a complete lack of empathy or understanding of real world economics could suggest you can afford to meet your household bills (including disability...

Sci-hub link: https://sci-hub.tw/https://jech.bmj.com/content/63/11/900.full

The Times' journalist did choose to tell the stories of two sets of parents that the paper's readership is very likely to empathise with (i.e. working professionals), so I see this as them taking a sympathetic approach to PWME (and carers/parents).

A new 'tool' is being developed to help clinicians access individual patient risk to Covid-19: Full details here: https://www.phc.ox.ac.uk/research/primary-care-epidemiology/covid-19-risk-tool It is notable that they don't appear to be considering a person's risk of suffering long term...

More details of the new model being developed can be found here: https://www.phc.ox.ac.uk/news/oxford-leads-development-of-risk-prediction-model-for-smarter-covid-19-shielding-advice

It's probably worth being aware that The Times are launching their own radio station at the end of this month (and I think they are sponsors of the Talk Radio station): https://radiotoday.co.uk/2020/06/launch-date-and-schedule-revealed-for-times-radio/ If the M.E. community don't get in there...

GPs will be asked to rewrite Covid-19 shielding list using new risk score 22 June 2020 By Sofia Lind http://www.pulsetoday.co.uk/clinical/clinical-specialties/respiratory-/gps-will-be-asked-to-rewrite-covid-19-shielding-list-using-new-risk-score/20041048.article Since the most vulnerable...

Even worse when you consider the following horrifying statistics: https://www.disabilityrightsuk.org/news/2020/june/disabled-women-over-11-times-more-likely-die-coronavirus

How many people are there in the average Tescos at any one time? How many pass through the store in one hour? It's impossible to socially distance in these sort of places and with the general public becoming more and more lax with this, things are going to get worse for previously 'shielded'...

The 'shielding' is ending at the end of July (the government says it is being 'paused' but also they will provide new clinical guidelines so that less people have to shield if the programme is reinstated)...

Interesting. I posted comments to DEFRA about the poor nutritional value of the free food parcel contents in response to their online survey early on in the programme.

This is a link for people who prefer meat that comes from farms with the highest husbandry standards. Coombe Farm in Somerset offers a range of organic meats, along with lots of other items including bones for stock, bone broth, organic pies, organic store cupboard items, some organic ready...

Yet this is taught as if there is actual evidence for it. The relevant part of the IAPT therapist curriculum for CFS/ME states the following: https://www.hee.nhs.uk/sites/default/files/documents/CBT LTC MUS curriculum.pdf The 'theoretical understanding' underlying the general MUS model that...

My eyes go like that when I'm in severe PEM - it's been like that for almost 30 years since I first got the symptoms of M.E. Edit: I have anti-histamine eye drops on permanent prescription for this problem. They help a little but my eyes get better after a few days in bed, so it's directly...