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I thought it might be good to have a thread where members can post and discuss the 'evidence' that governments and health insurers use to promote the idea that 'work is good for health'. This thread is for discussing the evidence for the general concept, rather than evidence specifically...

I've attached the relevant appendices from the DWP ESA/UC manual (the complete manual is over 250 pages). I haven't finished my 'close read' of the manual, but so far it appears that the DWP consider 'substantial risk of harm' can only be caused by a mental health condition, although the DWP...

I put a link to this in the relevant NICE guideline 'call for evidence' thread. I am not in a position to submit evidence myself, but I am sure a committee member will pick up on this (if no one else formally sumbits this).

NICE committee members please take a look at the following thread (if you haven't already): https://www.s4me.info/threads/work-rehabilitation-and-medical-retirement-for-me-cfs-patients-a-review-and-appraisal-of-diagnostic-strategies-2019-vink-et-al.11398/#post-203183

I haven't yet read through the whole paper, but a very quick glance over it makes me hope this article will be given serious consideration by the NICE review group. To me, NICE should consider the demands placed on a working age PWME as being part of their healthcare management, and take into...

It does look like an article worth reading fully, when able. In the meantime, it's available in an Easy Read version: The Ladybird Book of Mindfulness

The first time I was in the process of diagnosis, the second time when ATOS tried it on, they told me I had to get my GP to write, which she did. However, she was confused about why she needed to, she doesn't understand autism, she did it for me because of the journey time and my physical...

Here is the link to further information explaining the changes in Work Capability reassessments (2017): https://www.disabilityrightsuk.org/news/2017/october/guidance-work-capability-assessment-reassessment-published The main link contains further links to PDFs of the relevant DWP guidance.

Here is the link to the latest version of the 'assessor manual' for ESA and UC: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/777221/wca-handbook.pdf Edit: I need to put a warning on reading this. I have just reviewed the appendices 6-7 and my...

That's why I put a full description of my house and garden in writing on my PIP form (I had read the DWP assessors manual so had preempted the assumptions that HPs make). It's terrible, but it is really like being the pawn in a strategy game and you have to think ahead about the questions they...

I'm going to re-read all the DWP PIP and ESA assessor's manuals as part of the prep for developing the (UK) benefits threads I've started (they are hundreds of pages long - it will take me some time). But from memory, there was nothing in them stating or implying that a claimant's wheelchair...

I also specified how far to the bottom of the garden, I had read that they assume if you can go out in your garden you can walk 100 metres! Edit: I'm going to cover about the need to stipulate all these types of things in your original written application form when I develop the ESA/UC and...

I'm pretty sure I remember writing a lot on my PIP application about why I don't have a wheelchair: reasons included that I have no one available to push a manual one, my house is not suitable for using one inside (I wrote I can never be more than 2.5 metres from at least one wall due the...

I live in a 2-storey semi-detached council house and the stairs are getting increasingly difficult for me to manage without extreme pain, even without the energy problems. My house is rural which is perfect for my sensory and social problems. However, it is a rarity for social housing - I was...

It's safe. If searching for or downloading a new paper (one that isn't in the Sci-hub library) you need to enter the word in the box each time.

Members can put links on these public threads to any relevant threads in the membes only area, that is, those member-only threads where people have been discussing their personal experiences in relation to claiming these benefits. Non-members will not be able to access or read the posts, but...

I know this, but I was explaining why I was seperating in and out of work benefits. Edit: Once these threads have actually 'taken shape' I may ask members to go back and delete some of these 'question' posts, just to keep the information threads easy to read. Sorry, it will take me a few weeks...

It's interesting to see that attention deficit gets so much funding. I've never seen anyone privately fundraising for research into it, but I do know that it seems to fascinate researchers and psychiatrists! Edit: And a high proportion of those who suffer from it do not want to be medicated!

People with MS and Parkinsons are referred to specialists and have their symptoms and disease progression continually monitored by various healthcare professionals. They get lots of specialist nursing support and advice too. PWME are abandoned by their doctors, even in primary care, left to rot...

People are generally not interested in supporting research into a medical condition until they have experienced it, or see (and believe) how it affects a close family member or friend. Many people with MS and Parkinsons whose onset starts in their 20's are still able to get a 20-30 year career...