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I think the reason is that ME sufferers know their own thoughts and attitudes to life, that they have a positive outlook on life that is incongruent with clinical depression.

I am not talking about 'arguments' but what happens in actual practice to actual patients. I am not sure what you mean by primary and secondary arguments in this context. Most PWME go through their lives without engaging in the type of discussions we have here on the forum. What matters to them...

I do agree we need to be careful with our arguments in the context of dealing with the BPS brigade and when writing to journals, but I think we need to understand the frustrations of the average patient with regards to how they need other people to frame their illness as a physical disease. For...

I think it is easy to fall into a trap that we are just dealing with BPS professionals, whereas in our daily lives we are dealing with family, friends, neighbours, and (if mild) work colleagues. Most of these people do not think like BPS professionals, nor use complex arguments about 'mind-body'...

But exercise, or at the very least 'normal activity' is essential for human life. The only reason I am alive is because I am financially supported in a modern society (I would not for example, be able to move to seek food without severe PEM). So GET is not asking people to do things that the...

But surely if GET has harmed you then this is proof of physical disease?

I don't understand why people who are not depressed or don't have a mental illness should be told to deny they aren't depressed or don't have a mental illness. To me, that feels like we are being led to gaslighting ourselves and to deny our own lived reality and the experience of our own bodies...

Great minds think alike....

Unfortunately, this is not the case in many of the clinics. Few have a medical doctor as part of the team, so any diagnosis given would be from a therapist or psychologist. Additionally, several of the previous specialist CFS/ME services have now merged with BPS orientated pain and general...

I think we (patients) should be pushing the main UK ME charities to take this issue up with BACME once the final NICE guidelines are published.

A very timely piece and worth reading as background to the recent government Green Paper on out of work and disability benefits. The below piece of DWP commissioned 'research' is particularly disturbing for PWME...

It would be a considerable saving for me as I have to pay £38 a month for the £15 36 Mb package (guaranteed to be about 27 Mb, the same as I get now as it will be via the same fibre line). EE were (and I think still are) cheaper than going direct to BT for the equivalent package (inclusive...

Presumably there is no BT fibre broadband to your flat then. In my area BT are the only company offering fibre broadband lines. When I went with EE, EE had a contract with BT to use their lines. Since then EE have been bought by BT but are still being run as a separate company with independent...

I do wonder how many people are given a diagnosis of ME/CFS who are really in the phase of a post viral fatigue syndrome, i.e. a condition that is self-limiting even it continues for 1-2 years. Many of these patients may be at the phase where they are able to increase their activity levels...

I may get my daughter to phone for me. I moved from BT years ago due to the difficulties and hours spent on the non UK customer helpline (even my very patient daughter got driven round the bend with their inability to deviate from non helpful scripts). I see now they have a UK based customer...

I tried this a few weeks ago using the online application method and I kept getting a message at the end that there was a technical error and to phone their customer services. Trying to do this on the phone is beyond my cognitive capacities (I struggle with verbal communication) so at the moment...

I think some NHS services seem to offer the option for private treatments, in the same way that private companies can offer certain treatments on the NHS, providing they charge CCGs the NHS rates. The London hospitals particularly seem to have private wings on the same sites as the main NHS...

One of the most serious problems with even those clinics that feel they are trying to be helpful to ME/CFS patients is that they don't take account of the indirect harm their 'optimistic' view of being able to help people 'recover' has. The DWP will certainly take this to mean that ME/CFS is...

I just looked up the Yorkshire Fatigue Clinic. I was shocked that they encourage patients to sign themselves and their carers up to an initial workshop - for a fee - to judge whether or not they would be happy with the approach taken. This rather smacks of the approach taken with the Lightning...

I also think this may be why we didn't see more resignations from the committee - there is still room for the CFS (now more CF orientated) clinics to continue offering CBT and 'flexible' GET. Edit: Not all of the BPS NICE committee members were heavily involved in promoting the deconditioning...