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That's what I wanted to do! send with other name! hah, now I know I dont have to. Spare $500. But will try to test new angiotensin II abs. Well, there are some research o them in schizophrenia and other in neuropsychiatric illness so the autors hypothesis was that it can cause it.

Not sure if it changes anything, especially because it wasnt positive in other studies, but this was not the case for M1 antibody in study by Tanaka S et al. (2003). As you can see highest scores for CFS are way above scores from HC and other AI patients. The method is different though, as is...

Hope early 2018 ends up mmid 2018 and not late 2018.

I see, thanks for explaining. So researching T cells autoreactivity is much more complicated than B cells. Ah.. aboout CycloME, I know it wasnt blinded, but if they said the results are very good, better than Rituximab results, this should be exciting. Toxic or not, maybe we can get some break...

@Jonathan Edwards, arent there also autoreactive T cells in MS? Also, I dont get why is nobody much excited about CycloME being successful.

I didn't necessary think level of autoantibodies correlate with symptoms, very clearly and obviously they dont , but could indicate more chance that tthe person has autoimmune problem in general, by some other, not yet discovered antibodies.. well.. this is how I imagine it, but could be way...

Although they were removing all IgG with IA, not only B2, they've picked the participants via high B2 levels (I am not sure is it published what their levels were, but I know person on PR who was participating said he is in top 5% in levels and this is why he was picked). So with this it...

@Hell..hath..no..fury... , yes. The fatigue has definitely something to do with awareness/consciousness of the body. I experienced this during my almost remission on high dose vitamin D, the shift when I was aware of body and that awareness made me not fatigued. I guess must be somehow...

p.s. i've seen very good article on cicadian sleep disorder and purinergic signaling, eATP... all Naviaux stuff.. trying to find it, forgot where i read it

genetic but nobody in my family had it? i was told by someone who did rituximab --she is pos for 7 celltend antibodies..- that rituximab fixed her delayed sleep.. maybe she is member on s4me, not sure.. so in her case seems just another symptom.. N24 is just when DSPS gets too bad, as you know...

@Alvin , I wish to know too, lol, .. Lyme or glutamate -if u were speaking about ceftriaxone part. if you speak about 3pm wake time.. last days was 10.30 am and 11 am and i had my best days in a while.. but my body loves that delayed sleep :ill: 10 am is still compatible w some life..will be...

I don't think this would affect outcome , it is expected to get worse when stopped. It still counts as success

https://alzheimersnewstoday.com/2016/12/09/antibiotic-rocephin-restore-brain-function-alzheimers-disease/ I am thinking perhaps something like this has happened to me on IV rocephin, and not killing of infection. But it also improved my ME/CFS and flu-ish feeling much over night so I dont...

I think researchers who do these questionnaires are in fact self-deluded and trying to protect themselves from the fear of the reality that life might suck and they or their loved ones might suffer. It is desperately trying to find the silver lining, instead of accepting suffering. Bad for...

@Squeezy , yes I did. But i am not so convinced about Lyme being still active . My test was consistently positive until after IV ceftriaxone. And also disulfiram - which is not an antibiotic but a drug for alcoholics - in vitro kills all Lyme forms and none of the gut flora, so if anything...

Hello Another weird thread of mine. Anyone has this feeling from being cut-off from your body from neck down? I actually wasn't aware of this, it was subtle. I just had many dysfunctions - classical CFS, plus additional - apraxia (which is problem with cognitive-motor manual performance...

I have had Lyme and bartonella since very early, so it goes with that. I cant say if it's from birth but as a toddler I did already have tendency to fall asleep later than usual. It become a real problem since puberty, around 12-13, with functioning, up until then I dont remember...

Yes, I thought about this when I wrote the thread. It's simply "worsening" or a crash triggered by no activity, but happens very fast. Cant be deconditioning, or I have a subtype that has too fast deconditioning. I am hoping to find some watch that can measure blood pleasure and pulse ...

Endocrine subtype? I was also hypothyroid from 10 or so and it wasnt treated until 20, so it is hard to say what was ME and what Hashimoto then, but I think i can tell apart, and that i did have ME then too. Btw not sure about you but my extremities are always hot, never cold feet or palms...

@Mij, that's what we are discussing here actually - resting def makes me worse, if it's more than half day (after active few days). I tried to rest preventively, it makes me worse :D Sux. it will turn out GET is best option for me :D (you did not hear me say this :D ) @JaimeS, I am 31 and have...