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    Long Covid in the media and social media 2023

    Making data meaningful ., except too many m and ms ! Worth sharing
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    USA: News from #MEAction

    Moved post
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    Diane O'Leary, philosopher, media articles and interviews

    Moved posts Diane O'Leary has an article on medical gaslighting. .
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    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Must be uncomfortable for BACME to sit down with all those skelfs from prolonged fence sitting
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    Thesis Adaptation and validation of the Health Anxiety Inventory (short version) for medical settings, 2023, Colenutt

    Do we know the number of people with each condition ? I wonder if the drop at follow up questionnaire was even across conditions ?
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    Preliminary clinical and cost effectiveness of augmented depression therapy versus [CBT] for the treatment of anhedonic depression, 2023, Price et al

    Sessions are noted as " up to X number " A " minimum adequate treatment dose was completed by X number" Do these session numbers and treatment doses correlate ? A booster session sounds good - is this follow up making the difference ( rather than simply being spat out if the sausage making CBT...
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    DNA computer Liquid Computer Made From DNA Comprises Billions of Circuits

    @Kitty https://www.scientificamerican.com/article/dna-the-ultimate-data-storage-solution/
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    DNA computer Liquid Computer Made From DNA Comprises Billions of Circuits

    I had heard of DNA being used as a data store as it has huge capacity . This is a step further . https://www.sciencealert.com/liquid-computer-made-from-dna-comprises-billions-of-circuits
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    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    No understanding of PEM. Little / no understanding of common comorbidities Lumpers not splitters . A dangerous place . From memory when Phil Hammond announced his retirement on twitter he received many tweets from former patients saying what a lovely doctor he was , but the treatment made them...
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    UK - The Young ME Sufferers (TYMES) Trust

    My daughter got a birthday card from them in August , so they are still working. ( thankfully)
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    Corporate manslaughter - mental health death

    Posting here for info . The Independent newspaper report also highlights other investigations . Whether this will affect attitudes and processes remains to be seen, but perhaps it's small steps in the right direction...
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    UK Government ME/CFS Delivery Plan consultation

    some people with ME have english as a second ( or third or fourth) language - dosn't seem to be other language availabilities ( again )
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    Hypothesis The viral origin of myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Maureen R. Hanson

    CPET is available at colleges / unis studying sports science . I contacted some UK ones a few years ago with a copy of a protocol ( think it was Workwell ) and they confirmed that they could set up the test . Key was that they needed a GP/ doctor sign off . Can't remember costs off top of...
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    Long Covid in the media and social media 2023

    And again Long COVID problems being picked up by financial media ...regulator backlog impacting research (MHRA) https://www.ft.com/content/49287f26-7aa6-4606-8c81-a2ebbe72247d?sharetype=blocked
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    Long Covid in the media and social media 2023

    Not quite long COVID - mods feel free to move if more appropriate thread . " Immunity theft " as a concept highlighted in this mainstream article https://calgaryherald.com/opinion/columnists/opinion-we-dont-know-whats-causing-the-tsunami-of-sick-kids-but-wed-better-figure-it-out-fast
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    Functional Neurological Disorder (FND) - articles, social media and discussion

    Probably related to @Andy ' s posts on podcasts POTS seems to be being redefined ...
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    Post-exertional Malaise in ME/CFS - Webinar for Health Professionals - Dr Cathy Stephenson

    This is a great resource . For newly affected it will be priceless . Thanks to all involved , information such as this really will make a difference .
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