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    Virtual Consultations: Young People and Their Parents’ Experience, 2021, Proulx-Cabana, Gregorowski et al

    What are the ethics of having 10 year olds engage in a consultation without a parent / responsible adult present ? In which other medical speciality does this happen ?
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    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    I misread this as cortisol and dolphins (!). Made about the same amount of sense !
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    How peptic ulcer disease could potentially lead to the lifelong, debilitating effects of chronic fatigue syndrome: an insight by Kuo et al. 2021

    My daughter was found to have h pylori within months after glandular fever when gp was looking at other potential causes of fatigue . There are correlations between h pylori and liver and gallbladder issues too .
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    Exogenous Transforming Growth Factor-β in Brain-Induced Symptoms of Central Fatigue and Suppressed Dopamine Production in Mice, 2021, Lee et al

    Similarities with Parkinson's .
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    Vitamin D and ME

    Generally people associate vitD with rickets. My gp did not know 5 years ago that it plays a key role in immune system. With COVID I think all gps now know a bit more There has been research done re vitD and EBV and MS . From a bad memory EBV can switch particular vit D metabolic genes off...
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    Vitamin D and ME

    When my daughter failed to get better after testing positive for glandular fever and fatigue was becoming an issue I requested gp test vit D status. He was reluctant to do so, but agreed . Her level was 21 which shook him a bit. He himself would not prescribe without seeking advice from a...
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    “She used to be Tigger and then she was Eeyore”: young people, CFS/ME, exploring predictors of recovery, 2021, Clery, Crawley et al

    indeed. Kids used to simply be discharged....
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    “She used to be Tigger and then she was Eeyore”: young people, CFS/ME, exploring predictors of recovery, 2021, Clery, Crawley et al

    I don't know @MEMarge . Sonya has mentioned that children use noticably different language - I think that she mentioned the use of fatigue more ( but could be wrong). The kids page on AfME was revamped after input from parents on Educate ME project as it simply did not reflect the seriousness of...
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    “She used to be Tigger and then she was Eeyore”: young people, CFS/ME, exploring predictors of recovery, 2021, Clery, Crawley et al

    If a doctor / medic uses language to describe an illness children experience, children will adopt the same language until it no longer matches their experience ( and their constructs move) / their experience widens and so does the vocabulary. That's basically how children learn . This is why...
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    Which exercise & behavioural interventions show most promise for treating fatigue in multiple sclerosis? A network meta-analysis, 2021, Harrison et al

    How does the SUCRA score relate to the confidence intervals I don't have too much stats knowledge . It just looks weirdly arbitrary. Eta phone problems this morning double posted in a single post ( I should really be a user tester as I seem to be able to do stuff with tech that noone else can...
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    UK: Priority Setting Partnership for ME/CFS

    The survey has been open for two weeks now- I have checked with JLA and have been advised that it's OK to let you know re progress - this can help to make sure that it's as broadly represented as possible. I'm also a member of the steering committee in a carer role. There have been a total of...
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    Paediatric patients with [ME/CFS] value understanding and help to move on with their lives, 2019, Katherine Rowe

    50 % recovered- is this a new estimate ? Not the rule of thirds Not the paediatric 80 % Goalposts moving again ?
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    BPS attempts at psychologizing Long Covid

    This
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    Associations between social adversity and young children’s hair cortisol: A systematic review, 2021, Bryce et al

    Any allowance for age / hormonal development Any consideration of gene expression ( its a busy molecules and mediated/ modulated by a lot) Any checking on key elements ( such as calcium )
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    Genome-wide association study identifies RNF123 locus as associated with chronic widespread musculoskeletal pain, Md Shafiqur Rahman, et al, 2020

    Would this relate in any potential way to the calcium.ion channel dysregulation reported by the researchers at Griffeth ?
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Coyne has some good comments re exactly this
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    [CFS] and Bone Marrow Defects of the Jaw – A Case Report on Additional Dental X-Ray Diagnostics with Ultrasound, 2021, Lechner & Schick

    Interesting - what made them pick this patient? Were there others previously that had nothing abnormal (and this gets technique into a journal)? Usually when nothing shows up you are left to get on with it- no further investigation necessary. What made this different? My daughter has jaw...
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    Potential mechanisms of the fatigue‐reducing effect of [CBT] in cancer survivors: Three randomized controlled trials, 2021, Mueller, Knoop et al

    You had a brave friend. I do wonder if risk and side effects are properly explained for chemo. One of my aunts in her 80s died this year from cancer. She agreed to chemo as it is the treatment pathway everyone knows of. She was not prepared for the side effects and the fact that it would...
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    Weʼre raising £35,000 to Continue Vital ME Research, Keith Geraghty, 2021

    Donated to Keith and @dave30th . Best investments I have made
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    Sarah's adventures in blocking out light

    Use a portiere rod. It ' s a hinged curtain pole that moves with the door . Number of options available and you can get them made . Not cheap but they do work . https://www.curtainpole.co.uk/portiere-rods/
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