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Just stumbled across this: A surprising claim. What do we make of it?

Sorry to hear you've been so ill, @Graham, and have been treated like crap in hospital. I hope you can start to make up lost ground.

Maybe this question and its answer needs to be on the FAQs page, @Andy - I imagine a lot of people will be wondering that now.

Great to see the continued support of Carol Monaghan for PwME! She's great. Any updates on sign-ups, @Andy? Are they continuing to come in?

Very impressed at all these patient-centred aspects of DecodeME!

Do we have any local UK prevalence figures that we trust? I've been shielding since March but my boiler's annual service is due and I'm worried that if I leave it until winter, there'll be more coronavirus about.

I haven't been going anywhere where people are, but in case I every do, I've just ordered a cotton mask online to try, and I'll order more if I like it. I'm not planning on washing any of them, though - just leaving them for several days to self-sanitise. I'm assuming that's OK?

Well done, @Andy! Great job there. I hope it hasn't tired you out too much.

I registered for the above and got this email in reply: @Andy, how can people who aren't registered with FB submit a question? Do I understand from the above that it will be both on Zoom and FB at the same time?

Details now posted here:

I have a piece of card taped over my laptop camera so that I'm never accidentally visible! :)

@Andy, is it possible to set things up so that, by default, people's videos and mics are off? Otherwise, people watching in their jimjams might get some unfortunate exposure...

Sorry - Miranda retweeted it but I can't see how to pick that up.

I hadn't realised - Miranda Hart (2.3m followers!) tweeted about DecodeME last week: Edit - sorry, she retweeted this but I don't know how to show that!

As a leaflet, it's designed to be printed onto paper, so I think it's fair enough. But I wonder if there needs to be something designed for phones?

Just curious - why is that bad?

I don't think *any* patients in the UK will have been diagnosed by the CCC or IOM criteria. I think the NHS only uses the NICE criteria. I'm assuming that for DecodeME, you have to have had a diagnosis and then that we'll have to fill in some sort of CCC/IOM checklist to see if we're eligible...

Considering that the project hasn't had its formal launch yet - just its funding announcement - I think it's doing incredibly well. I feel confident about that 40,000! :)

Great that we're seeing new coverage even three days later in a major newspaper. I hope it drums up some more registrations!

But the writer strongly implies that those who object to GET are doing so solely because they haven't improved with it - rather than that those who object to GET have strong evidence based on PACE that it doesn't work, and that there is also pretty strong and widespread evidence of serious harm.