Search results

  1. Sasha

    DecodeME - UK ME/CFS DNA study underway

    @Andy - did you want to create a calendar entry / new thread for the webinar that's on today?
  2. Sasha

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    A truly astonishing lack of ME on that two-day programme.
  3. Sasha

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    In the UK, all I've heard about is that if someone gets a positive PCR test they have to isolate for 14 days and then that's it - they can go back to normal. But should Long Covid patients be seeking PCR testing as their symptoms continue? Particularly if those symptoms are viral and are...
  4. Sasha

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    But are any Long Covid patients being offered repeated PCR tests? I haven't heard of that happening, and there seems to be a huge number of such patients. And they seem to be being told by their GPs that they're no longer infectious. They're not being given the opportunity to make a judgement...
  5. Sasha

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    My question still stands, though - do Long Covid patients need to continue to isolate? Patients need to know how to behave to protect others.
  6. Sasha

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Does that mean that patients would still be infectious?
  7. Sasha

    DecodeME - UK ME/CFS DNA study underway

    It's TalkTalk.
  8. Sasha

    DecodeME - UK ME/CFS DNA study underway

    Thanks but don't want to provide the email address I registered with. But if I haven't got a message yet, I suspect others won't have - might be worth checking if a chunk of people have been missed off.
  9. Sasha

    DecodeME - UK ME/CFS DNA study underway

    Still nothing, three and a half hours in...
  10. Sasha

    DecodeME - UK ME/CFS DNA study underway

    Still nothing for me...
  11. Sasha

    DecodeME - UK ME/CFS DNA study underway

    I didn't receive anything yet and I only have one email address and there's nothing in my spam box. Should I be concerned?
  12. Sasha

    DecodeME - UK ME/CFS DNA study underway

    I just went to look at DecodeME's Twitter account and got a message reading, 'Caution: This account is temporarily restricted. You’re seeing this warning because there has been some unusual activity from this account. Do you still want to view it?' Is there a problem, @Andy ?
  13. Sasha

    Why is ME/CFS getting so little research funding?

    Thanks - that doesn't seem to be about pre-onset, though. I'm not clear about the advantages of looking pre-onset, however!
  14. Sasha

    Why is ME/CFS getting so little research funding?

    Thanks, Trish - do you have details?
  15. Sasha

    Why is ME/CFS getting so little research funding?

    This pandemic would seem to offer a golden, if horrible opportunity to do this. What kind of pre-onset info would be helpful? Can we do anything to get such a study to happen?
  16. Sasha

    Why is ME/CFS getting so little research funding?

    Interesting analysis, @Michiel Tack, and well worth doing. I wonder if one issue, at least in the UK, is the BPS proponents' portrayal of PwME as people who issue death threats against researchers. That has been repeatedly in the national press in the UK. I'd like to hear the views of current...
  17. Sasha

    UK: Physios for ME

    Well done, @PhysiosforME - really appreciate your great work on this.
  18. Sasha

    The biology of coronavirus COVID-19 - including research and treatments

    They judge exposure by how many of the placebo people got the virus.
  19. Sasha

    Turning the Remote Access Revolution into Reasonable Adjustments [Guidance on videoconferencing]

    I would like to see videoconferencing as a standard, presumptive offer to people applying for PIP and ESA. I don't see why disabled people should be dragged across town for a physical ordeal as part of their assessment.
  20. Sasha

    The biology of coronavirus COVID-19 - including research and treatments

    They would randomise them to either the placebo or active vaccine arm and the randomisation ought to have delivered equalish exposure to the virus.
Back
Top Bottom