An observation I have is that in Ireland anyway some people with visible disabilities get dozens of hours of personal assistance to allow them not be that disabled by their disability e.g. the Leaders programme, yet people with chronic illnesses such as ME can struggle to get one or 2 hours a...
(Just copying a message I wrote last year on Phoenix Rising)
I'm aware of a lot of efforts to create pressure of various sorts in the UK over the last 15 years or so.
- Action for ME ran a 1% campaign, calling for £35 million per year to be spent on ME research, 1% of the total cost per year...
(Probably not very important)
Not to be confused with Richard Horton of the Lancet
---------- Forwarded message ----------
From: 'Dr. Marc-Alexander Fluks' fluks@combidom.com [LocalME]
Richard Holton's 3rd Uehiro Lecture: PACE
Source: Practical Etics
Date: May 28, 2018
URL...
http://psycnet.apa.org/record/2018-23402-001
Is fatigue a disease-specific or generic symptom in chronic medical conditions?
Journal Article
Database: PsycARTICLES
Menting, Juliane Tack, Cees J. Bleijenberg, Gijs Donders, Rogier Droogleever Fortuyn, Hal A. Fransen, Jaap...
Free full text:
http://downloads.hindawi.com/journals/mi/aip/3972104.pdf
Source: Mediators of Inflammation Preprint Date: April 20, 2018 URL: http://downloads.hindawi.com/journals/mi/aip/3972104.pdf
Reduction of glucocorticoid receptor function in chronic fatigue syndrome...
Another infection that leads to long-term symptoms including fatigue. I hope they follow-up patients again at a later stage.
Free full text:
https://link.springer.com/article/10.1007/s10096-018-3268-9
European Journal of Clinical Microbiology & Infectious Diseases
pp 1–8| Cite as
Long-term...
American Journal of Respiratory and Critical Care Medicine 2018;197:A6146
Exercise Intolerance in Preload Failure Treated with Pyridostigmine
M. Faria Urbina 1, R. Oliveira 2, A.L. Oaklander 3, A.B. Waxman 1, D.M. Systrom 1...
Ph.D. Thesis Milrad
Via Dr. Marc-Alexander Fluks
Source: Univerity of Miami
Date: May 3, 2018
URL: https://scholarlyrepository.miami.edu/oa_dissertations/2049/
https://scholarlyrepository.miami.edu/cgi/viewcontent.cgi?article=3081&context=oa_dissertations
Couple-based stress...
(I wasn't sure which forum to post this to)
Somebody sent me this saying:
https://www.eventbrite.co.uk/e/humanitarian-history-and-practice-tickets-45230075373?aff=erellivmlt
J Psychosom Res. 1998 Jul;45(1):77-83.
Illness beliefs and treatment outcome in chronic fatigue syndrome.
Deale A1, Chalder T, Wessely S.
Author information
Abstract
Longitudinal studies have shown that physical illness attributions are associated with poor prognosis in chronic fatigue syndrome...
A chronic fatigue study:
Psychol Med. 2003 Feb;33(2):283-7.
Predictors of outcome in a fatigued population in primary care following a randomized controlled trial.
Chalder T1, Godfrey E, Ridsdale L, King M, Wessely S.
Author information
Abstract
BACKGROUND:
The objective of this study was to...
Behind a pay wall:
Stress won’t increase your chances of getting cancer
https://www.thetimes.co.uk/article/stress-won-t-increase-your-chances-of-getting-cancer-8tnmbp8xc
https://onlinelibrary.wiley.com/doi/abs/10.1002/pon.4740
PAPER
Free Access
Does stress increase risk of breast cancer? A 15‐year prospective study.
Phyllis Butow
Melanie Price
Joseph Coll
Katherine Tucker
Bettina Meiser
Roger Milne
Judith Wilson
Louise Heiniger
Brandi Baylock
Tracey Bullen
Prue...
Free full text:
https://link.springer.com/article/10.1007/s11764-018-0690-z
Some of these researchers are active in the CFS field
Journal of Cancer Survivorship
pp 1–9| Cite as
Are the effects of cognitive behavior therapy for severe fatigue in cancer survivors sustained up to 14 years...
I saw this in the ME Global Chronicle. I haven't watched it myself. I am interested to hear people's thoughts about whether it is worth sharing.
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WellMe AGM 2017 Guest Speaker Phillida Bunkle HD 1080p
Wellington ME/CFS Support Group
Published on 18 Dec 2017
Talk in the Blind Spot The...
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