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  1. Suffolkres

    Gary Burgess - The ME show, and updates about Gary's health.

    Oh yes, please have a go! Have you software to do this? I ask as Russell F kindly did a transcript for my interview with the BBC on NICE etc. i now need to nail Waveney CCG Director of Commissioning at a Joint Scrutiny meeting, with a verbatim account of her admitting their faults and...
  2. Suffolkres

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    https://www.meassociation.org.uk/themeshow/… Caroline Kingdon on!!!
  3. Suffolkres

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    This archive is very useful. Thank you. This caught my eye, Source: National Institute for Clinical Excellence (NICE) Date: February 23, 2004 URL: http://www.nice.org.uk/pdf/PressreleaseCFSME23FEB04.pdf "PRESS RELEASE NICE TO DEVELOP GUIDELINE ON DIAGNOSIS AND MANAGEMENT OF CHRONIC...
  4. Suffolkres

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Both from the London School of Hygiene and Tropical Medicine - Dr Nacul ( as a GP) and Specialist Researcher and Nurse Caroline Kingdon. Don't think NICE refused them from the Committee. Our Local CCG ( Waveney) 'refused' them! Definitely favorable to us to have them on NICE.
  5. Suffolkres

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Thank you, thank you.!..... children and young people get the worst deal of all. I know as a mum, who has been fighting for over 20 years, (my son was fatigued at 4 and suspected of having ME at 8 in 1994); I know as a specialist professional teaching sick and needy kids since the early...
  6. Suffolkres

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    I have always rather like being labeled as a "professional irritant".... process. process, 'process is all' is my mantra!
  7. Suffolkres

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    I will have to delve back into my archives..... If I can't locate it Tom K will, or Malcolm H Margaret W
  8. Suffolkres

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    I have rather a high number of emails .....! Then I was better at filing them. It's good to know the old brain cells and memory are still working! This is a corker of an email! Sent: Saturday, May 15, 2004 7:01 PM Subject: [CO-CURE] ACT: The PACE and FINE trials: correcting some...
  9. Suffolkres

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    I have been commenting elsewhere about the HRA statements by John Montgomery. (Conflict of Interest and Insurance Industry) His statement is worrying to me. I am an elephant who never forgets. :emoji_elephant::emoji_elephant::emoji_elephant::emoji_elephant::emoji_elephant: " Background The...
  10. Suffolkres

    How payments from insurance companies might potentially bias proponents of CBT and/or GET for ME/CFS (such as the PACE Trial investigators)

    RE John M's letter to Norman Lamb....needs some checking for accuracy? (My emphasis) "Background The PACE trial was an evaluation of the therapies that were recommended by NICE at the time that the study was proposed, with the caveat that the evidence base at this time was weak...." Yet...
  11. Suffolkres

    How payments from insurance companies might potentially bias proponents of CBT and/or GET for ME/CFS (such as the PACE Trial investigators)

    This is so compelling...... I might have to get it transcribed ( not about ME but Fiona Godlee. BMJ and SWiss Re, no less....about the bigger picture in medicine!) "Hypocritic" oath or what? John S on the thorny issue of bias!
  12. Suffolkres

    How payments from insurance companies might potentially bias proponents of CBT and/or GET for ME/CFS (such as the PACE Trial investigators)

    One here, more to come..... John Schoonbee, global chief medical officer, Swiss Re, Emile Elefteriadis, head of life and health products Canada, Swiss Re Correspondence to: J Schoonbee John_Schoonbee@swissre.com The benefits of better diets extend beyond health “Let food be thy medicine...
  13. Suffolkres

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    She is a star:angel:! See on her website; So Far in January 2019 News for 2019: I'm pleased to announce that I'm now a regular contributor to BMJ Blogs. I'll be generally doing (shorter) versions of suitable posts from PLOS Blogs. First up: Evidence and choice - what does one mean without...
  14. Suffolkres

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    Royal Society of Medicine conference www.afme.org.uk 'Action for M.E. Chief Executive, Peter Spencer, will be one of the speakers at a conference of healthcare professionals at the Royal Society of Medicine (RSM) in London, 28 April 2008. The RSM says the aim of the meeting is to take a broad...
  15. Suffolkres

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    I think that's a good idea starting with "honest John's" witness statement to the Select committee https://parliamentlive.tv/event/index/af056282-eb9a-4cad-b57a-66247a524b1f?in=11:12:35 among st the others reps MRC RCUK, Sir Bernard Silverman stating they rely on funding from the Universities...
  16. Suffolkres

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    https://parliamentlive.tv/event/index/af056282-eb9a-4cad-b57a-66247a524b1f?in=11:12:35 Watch, he is in the spotlight! 09:26:09 Subject: Research integrity 09:26:10 Witnesses: Professor Sir Bernard Silverman, Chair of Trustees, and James Parry, Chief Executive, UK Research Integrity...
  17. Suffolkres

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    https://www.hra.nhs.uk/about-us/news-updates/conflicts-interest-blog-hra-chair-jonathan-montgomery/
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