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  1. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Sorry Adam. What is CCC? Sorry, not too sharp this morning! Canadian Consensu.....!
  2. Suffolkres

    ME Association Website Survey: What are the most important things a GP needs to know about M.E.? | 08 January 2019

    Costing info for our region........ with missing data put back in!
  3. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Costing info for our region........ with missing data put back in!
  4. Suffolkres

    ME Association Website Survey: What are the most important things a GP needs to know about M.E.? | 08 January 2019

    Here is this historic NICE costing which I prepared and put on my Google drive site. It was for our "negotiation" (argument) with Norfolk and Waveney CCGS...... To Commissioner at Waveney; "Attached, as agreed is a short 3 pages of context which lists the links to the key documents I...
  5. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Here is this historic NICE costing which I prepared and put on my Google drive site. It was for our "negotiation" (argument) with Norfolk and Waveney CCGS...... To Commissioner at Waveney; "Attached, as agreed is a short 3 pages of context which lists the links to the key documents I...
  6. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    We looked at this in 2016 at the request of Commissioners in Suffolk and because the ME Service had not/could not/ would not have time to develop it themselves. It would be good to get some feedback and to send it onto Russ and the MEA?
  7. Suffolkres

    ME Association Website Survey: What are the most important things a GP needs to know about M.E.? | 08 January 2019

    We also developed some "training" material and info for GPs. Hven't properly rolled this out as yet but did get a clinical overview from Jo Edwards a while back. Will post for comments later. http://nandsme.blogspot.com/p/blog-page_23.html Resources GP Awareness During meetings with...
  8. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Merged thread Moderator note: new thread created from posts originally here Resources for GPs by Norfolk & Suffolk ME and CFS Services We also developed some "training" material and info for GPs. Hven't properly rolled this out as yet but did get a clinical overview from Jo Edwards a while...
  9. Suffolkres

    ME Association Website Survey: What are the most important things a GP needs to know about M.E.? | 08 January 2019

    I needed to "prime" a new GP about husband's ME who was being asked to process a referral -(4 page form) for a review with the Suffolk Specialist ME and CFS service doctor. I rang into the practice manager and supplied all the necessary paperwork and requested the GP look at them ahead of the...
  10. Suffolkres

    ME Association Website Survey: What are the most important things a GP needs to know about M.E.? | 08 January 2019

    https://www.actionforme.org.uk/uploads/pdfs/ME-briefing.pdf Briefing for ‘Myalgic Encephalomyelitis June 21 st 2018
  11. Suffolkres

    ME Association Website Survey: What are the most important things a GP needs to know about M.E.? | 08 January 2019

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3269106/ JRSM Short Rep. 2012 Jan; 3(1): 4. Published online 2012 Jan 12. doi: 10.1258/shorts.2011.011127 PMCID: PMC3269106 PMID: 22299071 Alternative diagnoses to chronic fatigue syndrome in referrals to a specialist service: service evaluation...
  12. Suffolkres

    United Kingdom: Science Media Centre (including Fiona Fox)

    Some good journo....... and I am aware Panorama journalists and producers are still interested...... M.E. and me | BBC Newsbeat http://news.bbc.co.uk/1/hi/programmes/panorama/archive/506549.stm -1999...
  13. Suffolkres

    United Kingdom: Science Media Centre (including Fiona Fox)

    Like Jerome Burne for example.... https://jeromeburne.com/ Greetings “Evidence based medicine” should, surely, mean all drugs have been rigorously tested. But after 20 years as a health journalist I’m still shocked at how evidence for harm can be hidden and evidence for benefit boosted. We...
  14. Suffolkres

    Wesselys Mental Health review could also replace Mental Capacity Act

    You are right Lucibee. When the Mental Capacity Act and Deprivation of Liberty came in 2005, there was concern for people with ME having their rights to choose treatment options removed from them. This was an issue for some like Sophie Mirza. Safeguarding has also been a huge problem for...
  15. Suffolkres

    Diabetes meds. What can you tolerate?

    May be of interest and the bird posting is for Jo Edwards! David Healy Yesterday at 11:30 AM · Aberystwyth on the West Coast of Wales is one of the best places in the world to see starlings murmurate. Clive King from the Computer Science Department there also organises TedX talks and on November...
  16. Suffolkres

    United Kingdom: Science Media Centre (including Fiona Fox)

    Greenpeace have capitulated to corporatism and money spinning and grabbing. They, with 9 other large "charities" "allowed" and endorsed the destruction of a key "Suffolk Coastal local plan protected" wildlife space with 250 community planted trees, badgers and other wildlife in Rushmere and made...
  17. Suffolkres

    United Kingdom: Science Media Centre (including Fiona Fox)

    I know I am recycling, but think it's useful to re-highlight under this thread. Here's one JtJ did earlier, https://johnthejack.com/2017/10/20/a-response-to-fiona-fox/ and a great link...
  18. Suffolkres

    United Kingdom: Science Media Centre (including Fiona Fox)

    Am sitting here with my jaws dropped....... The audacity, arrogance and superciliousness of the woman! No wonder we have a problem with the SMC! I feel for poor Carol! Mentions ME and claims it is caused by a virus... https://www.bbc.co.uk/academy/en/articles/art20130702112133756 "Science...
  19. Suffolkres

    United Kingdom: Science Media Centre (including Fiona Fox)

    Academy of Medical Sciences List of Presidents 2015–2019 Sir Robert Lechler (King's College London).............
  20. Suffolkres

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    If this is a repeat, I apologise! From LocalME; https://steamtraen.blogspot.com/2018/12/have-scientists-found-explanation-for.html "Thanks for posting that link V. Prof Pariante did not make clear that this study was not about ME, but Jon Peters was very good and he pointed this out. He was...
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