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A fine example of balanced reporting..... Interviewed, but didn't report what was said. Moves straight onto as is Prof Wyller whose views are reported.

Oh, he forgot to mention wandering womb.....

I can see some benefit to that, but the issue around the fluctuations in ME might result in a misleading entry on the patient's notes. I usually wait until I am well enough to go to the GP, so they will see me at optimum performance, fatigability being variable in my case. The better my...

There's another issue, in Europe at least. Fake drugs making they're way into the supply chain. Apparently, there's big money in it.

Thanks for the link. So they tested for a period of a month. One group on 5 or 10mg for a month and the other a placebo. They conclude further, longer term research is required. Someone who knows more about this (almost everyone I suspect) please correct me here if I'm wrong. One of the...

Well, how low is low dose? I've seen what long term treatment of steroids can do to a person. I would want some guarantees not "may" or "might" for "some" before going down that path. Especially, if we're talking long term.

I think lots of things might mask the onset of ME. My own clinical picture was confused by hypothyroidism and borderline a anaemia. My hypothyroidism wasn't well managed as the GP at the time felt TSH and T4 levels in "normal" range should relieve all symptoms. Then we have the effect where...

I would be very wary of using adrenaline or epinephrine this way. I know some of us find that sometimes a period of stress may seem to cause a brief window of feeling well. Then the PEM hits. I think of it in terms of using a high performance fuel in a vehicle that isn't "tuned" to run on...

This brings us back to the issue where treatment provided by some clinics, while being called CBT, is not the standard recommended (directive) form. Lack of records of harms by clinics, combined with the better clinics quietly operating outside the guidelines to the benefits of their...

The difficulty is when the perpetrators also manage to get their false message, erroneous information out first thanks to undue influence with the media. Before you even open your mouth you're forced into the role of being defensive, or in denial. However, I also believe people choose to...

It does. It feels very surreal, even decades in. Let alone when it first starts happening to you. This is what's so dangerous about the article in the OP, however well it was intended. It's also a fundamental flaw in the BPS argument. From the start most of us just find it so surreal we do...

The issue that strikes me here is we have no way of balancing the numbers. Certain doctors will claim that a high percentage of their patients will have a certain type of abnormality, while another will insist that's rare and that many of their patients have some other, entirely different...

As the late Terry Pratchett put it:

Yes, I'd quite like some protection from Please.

On which planet? o_O

Forgive me if this is a stupid suggestion & I've got my timeline muddled. This looks to me like the health authorities are simply ignoring or using the codes to carry on in their own merry way, despite the Danish politicians' (Health Minister?) undertaking that this should be considered a...

I've checked with the vet supplier & they only sell to vets who have accounts with them. The cheaper amazon stool is currently £229 plus vat. It's in their sale that lasts till the end of Feb. Out of our reach. Although I might carry on investigating cheaper saddle style stools.

Even if we do get "reliable" figures to what extent are they trustworthy? We know that the BPS cabal once happily quoted false figures as reliable evidence of the success of GET/CBT. In surgery there is the whole argument about mesh used to treat gynae issues and hernias. Surgeons were quite...

Yes, that's a good point. My sink is beside the kettle and there's a long run of worktop, so for me I think that would be okay. I more in need a solution of something to sit on where I'm my legs aren't in the way what with cupboards & dishwashers under the counter & I'm not twisting...

Quite the sweeping statement! I'm intrigued to know which other major medical ailments? Is major used here as a medical term? :rolleyes: