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And we're back to correlation does not equal causation. For example: i started to experience some very low, very bleak moods. It was extremely unpleasant and I had no idea why. I would be happily minding my own business and suddenly my mood would plummet like a stone down a very deep well. So...

Definitely. Anything fermented is out. Also other yeasty things like marmite. Shame, cause I love it!

I can have yoghurt, but mostly don't bother with it. Not sure I've ever had the "good" or "live" stuff. kefir - not a chance in hell I would even try it. Fermented stuff does extremely evil things to my insides.

I have completely given up on probiotics. I always end up with a really bad tummy ache.

If I remember correctly there were posts about Foggy Doggy on the MEA facebook page - people.got in touch offering to "host" him and there were updates in his travels. There might have been a write up in ME Essential the MEA member magazine. So connections to both IiME & MEA, I think.

Seriously? Are they having a laugh? FFS!

Perhaps we could invite Sally to join and discuss it with us? How does she plan to involve/engage with those who would typically "support" an ME patient. What literature will they be using? I can see the benefit. Done well, this could make a real difference.

My niece is in her mid 20's and was diagnosed with Type 1 diabetes when she was a toddler. She is a very active person with a busy lifestyle and would love an insulin pump. The NHS won't supply one because she manages her condition too well. She can't afford one - the pump itself is over £1k...

I may be wrong here so feel free to correct. I don't think they did apply the London criteria. They applied their own modified version of the London criteria and simply continued to call it the London criteria. If memory serves Ellen Goudsmit was one of the authors of the London criteria and...

From @Daisybell 's quote Well, I can tell you right now from experience, exercise is absolutely no good when you have an undiagnosed or under medicated thyroid condition, or if you are anaemic...... It will not help and you will most certainly feel worse. I am sure there are lots of other...

Dear @Action for M.E. I would like to point out that the results from PACE made it very clear that GET and/or PACE style CBT do not work. Even when you use the widest possible criteria, that is guaranteed to include patients who do not have ME and who may even benefit from gentle exercise...

My old science teacher would have loved you! A long time ago, when I was a little girl a stroppy teen, science experiments had to be written up in a certain way and you had to show your raw data, plus you had to list your assumptions, then you wrote up your conclusion. If your assumption was...

Pigs in (S)PACE! :D Sorry. For those unfamiliar with the Muppet Show: http://muppet.wikia.com/wiki/Pigs_in_Space

Perhaps this could be the prompt? If they are aligning themselves with BACME's philosophy, then at least we know where we are with them. If not, I doubt they would be happy to find themselves allied by implication. I don't tweet, but would anyone be prepared to contact Workwell, providing a...

This is why I wonder if it would be worthwhile to contact him- Firstly, so if AfME are being word-weasels and twisting/ "interpreting" Workwell's comments, they are held to account and publicly corrected . Secondly, to make Workwell aware of how easily their comments can be misconstrued and...

Perhaps we could invite Mark Van Ness and Workwell to comment, as they have been cited in AfME's statement? It seems reasonable they be made aware of AfME 's statement and given a chance to support, clarify or distance themselves.

And, that in itself, should be raising red flags all over the place. It seems to have become a political entity, where it's best to keep your mouth shut to keep in with them, rather than an council dedicated to good, rigorous research carried out in the interests of public health.

Is that tied to, used by, or influenced by? If they are being influenced by BACME, then that is a serious concern. The implication of a patient charity being used, or allowing themselves to be used as a fake shop front. I have tried to give them the benefit of the doubt and assumed they...

In my view this is simply repositioning themselves, now that so many people, even outside of the ME world, now know PACE was a truly terrible trial, from concept to design to handling the data. They will continue to try to play both sides, but they need to put a little distance between...

I would like to think so, but experience has made me suspicious. Depends on who is on the CSDR Independent Review Panel and how they interpret the word "Independent" .