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    Hormone Replacement Therapy (HRT) and ME

    I would be very interested to hear about any experiences anyone has had with HRT. Good or bad. it's a kinda personal thing so please PM me if you'd prefer.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    One of our problems is not that we don't have valid, strong arguments, we have too.many..... It's about choosing the right one at the right time. I think the BPS politics will have to be addressed, or at least referenced, in the arguments against CBT, GET & IAPT. Otheriwse, if a biomarker is...
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    David Tuller: Trial By Error: Professor Sharpe’s Pre-Hearing Briefing for Monaghan

    :rofl::rofl::rofl::rofl::rofl: That made me laugh hard enough to induce PEM!
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    I didn't like Ricky 's joke either, but frankly I have had much worse said and done by disbelieving or ignorant doctors and people assessing me. This distraction by blaming a comedian didn't work in the past for a prime minister and I'm hoping it won't work now.
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    Video Recorded PIP Assessments...

    I wonder who is responsible for storing the current recordings @Luther Blissett? I had assumed that a contractor would only have access to your data for as long as necessary to process your claim. That the data they held would only be used for the purpose if processing the claim. This is an...
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    Video Recorded PIP Assessments...

    Perhaps the claimant could clearly ask at the start of the (current allegedly unrecorded assessment) if the assessment is being recorded? Presumably, to lie would be illegal?
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    Video Recorded PIP Assessments...

    Sadly, that 's probably one of reasons they're doing it. It won't be for claimants benefit that's for sure.
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Perhaps now they can update their treatment recommendations page?
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Probably drafting his apology
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Could we, as S4ME, send a thank you email or tweet to Carol Monaghan and all the ministers who took part today?
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Yep. Basically, we need to start again, pretty much from scratch. No point trying to build something solid on rotten foundations.
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    I really hope they consider that if that is how Sharpe responds to an MP, what it might be like for vulnerable patients whose lives are falling apart and who have nowhere else to turn..... I also hope Sharpe will have annoyed them enough to have chipped some of that deference away.
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Hoping no one has noticed that won't work for those either......
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Thanks for the comments guys. I can't handle more than a few minutes at a time and will be eagerly waiting for the transcript. Your posts help me feel less cut off. :thumbup: Oh, to be there!
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Hmmmm....that sounds like they're quoting a doctor @Forbin. Curious.
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    Ex-Reporter Prevails In ERISA Suit Against Prudential

    Fingers crossed you'll get those fees too @B_V. Good luck!
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Probably not as he's been blocked in twitter.....calling @dave30th.... Now that is very poor form. Block someone on twitter and then make accusations against them they won't see first hand and may not see at all.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    The attitude to charities, their members and by extension patients is reprehensible. I am glad to see it so openly expressed though. Sharpe says more about himself in that tweet than he realizes!
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