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A word of warning - the way IAPT is going in this country, other people with chronic illnesses will shortly be joining us in the shiny new MUS clinics.

I would say simply addressing the most troublesome symptoms with whatever meds are suitable and tolerated by the patient. Giving patients realistic expectations and teaching them to pace themselves properly - as patients themselves advise. Supporting them in their attempts to access whatever...

They have always attacked charities, though. Usually, by claiming that being a member of a charity or patient group reduced your chance of recovery. I am really glad to Sharpe being so open and honest. Now the attitude we have faced behind closed doors is out in the open for all to see.

Brilliant! :thumbup: Well done @Graham!

...and it's not as if people aren't aware that David is now crowdfunded. David can't be accused of not being entirely open about that. Unlike some people....

I think you are. The American Sense About Science took a different view, if I'm remembering correctly. The UK SAS were pro PACE.

I would say definitely. Years ago I met a lady who had MS. It was quite advanced. Although English she was living in poor South African country when she first got sick. This was way back when MS was not as well understood. The doc told her he thought she had MS and that she should return to...

Yep. I've lost friends by pointing this out.

Sadly, yes. I have spoken to AfME members who ME patients and they seem outraged at the the whole CBT/GET/BPS business. When you point out the role AfME play, I 've gotten the "oh, I can't be bothered with the politics" response. :banghead::banghead::banghead:

Well, that's hardly the basis of a sensible dialogue on Michael 's part!

I was given the impression amitriptyline was a fairly benevolent drug, especially at low doses. It certainly wasn't for me.

I'm really glad @dave30th is picking up on this. My worry is that, as we are distracted by the sight of PACE slowly taking on water, the next phase of our mistreatment/neglect and abuse is already up, running and firmly established in the form of IAPT. I can just see them saying: "oh well...

Of course there are other costs involved in setting up shiny new IAPT clinics - the cost of employing all these barely trained "therapists" who will have holiday pay, national insurance contributions and a public sector pension. Of course they will be so minimally trained that if the IAPT...

I think he does understand, but he's just so used to people falling into line he's struggling to accept that people won't just agree with him to prop up the establishment. It's increasingly obvious he is unable, or unwilling to see, or acknowledge any viewpoint that differs from his own.

Brilliant! If Sharpe keeps this up it'll be like an extra high profile advocate on our side :thumbup::laugh:

Yep, that's familiar. Once they start all you can do is rest. Doing simple things like drink a cup of tea or use cutlery becomes very difficult, if not impossible. It was worse for me earlier in the illness, I had no real concept of what "resting" was really. One thing I discovered was that a...

I would agree that it is best to uncouple refutation of theory from condemnation of researchers. I would also point out that researchers have a responsibility to make sure their theories and trial results are not abused and misunderstood. One example of this was the press release of PACE...

Welcome to the forum!

Michael Sharpe: Poor science is poor science, Michael, regardless of the "results". There are criticisms of the way reports of harms were handled too.

So, does that mean that they are going to carry on with AYME's philosophy? Not a great sign, is it?