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Eric Topol More than 3 years in, with tens of millions of people still suffering, this is the comprehensive list of validated treatments for #LongCovid as established through rigorous, randomised clinical trials. (Image is a big empty rectangle)

$56 million on administration and consultant fees isn't far off what the whole of Europe has spent on Long Covid research in total. It defies belief.

Pretty decent article. More rigorous than a typical popular article, as it has references. Author actually interviewed people with actual expertise versus interviewing people with large Twitter accounts.

Yeah. Was just about to post this when I saw the comment above. “Soon, we will be formally announcing the launch of our new clinic: a center dedicated to recovery from complex chronic illnesses.” Would prefer the words “treatment of” instead of “recovery from”complex illness. You can...

Umm that is some bio…..

But basically my feeling is that these companies like Posit Science Corporation and Axsome (solriamfetol) should be paying for their own trials. Modafinil is off-patent.

“The one on sleep will evaluate the effects of wakefulness-promoting drugs solriamfetol and modafinil, as well as those of light therapy, supplementation with the sleep-inducing hormone melatonin and coaching on how to get good sleep. “ I really need coaching on how to get good sleep? Most...

Email to Emily Taylor of Solve: Hi Emily, Any way to protest these RECOVER projects? Basically none of these projects will be of any benefit to LC/MECFS patients. Here is my list of meds off of the top of my head that are in need of clinical trials. Cyclophosphamide (blinded)...

Accused professor is suing. https://fortune.com/2023/08/02/harvard-dishonesty-professor-lawsuit-fraud-defamation-bias/

NIH launches trials for long-COVID treatments: what PATIENTS think “It’s a fabulous way to burn through a billion dollars with basically zero chance of any of these treatments having any beneficial effects.”

WAPO article NIH announces long covid treatment studies with hundreds of patients https://wapo.st/3QgT6XR

https://boundlessfilmfestival.com/for-the-better/ A viral infection in my brain has kept me bound to my room for the past two years. This short documentary opens a window into what it’s like to live with chronic illness, and explores why I wouldn’t choose not to suffer from it.

NIH begins long-delayed clinical trials for long Covid, announces new research office Not much to get excited about IMO https://www.statnews.com/2023/07/31/long-covid-nih-clinical-trials-research-office/

Just incredible. Researchers in neurology find that 88.1% of their pts have an identifiable ANS issue, & 27.1% have anti-gAChR antibodies signifying AAG, a supposedly v rare neuropathy. All those pts were originally dxed with FND/"conversion disorder". Response moved here

The NYT asked me to write a guest essay about the resignation of Stanford's president. My takeaway? This is so much bigger than one man and his research. Scientific integrity is vital and its guardrails have proven insufficient:

Article in NYT by Theo Baker. Haven’t read yet… The Research Scandal at Stanford Is More Common Than You Think...

So Ed Yong is leaving the Atlantic. Twitter thread worth reading.

Ed Yong: Fatigue Can Shatter a Person, July 2023, The Atlantic New Ed Yong article on MECFS dropping tomorrow (Thursday). Atlantic is now basically fully paywalled. _________________ Edit: Another article by Ed Yong is posted on this thread here: Reporting on Long Covid Taught Me to Be a...

Here comes Natalie!!