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I thought the Washington Post article was well reported—pretty rare in this field. reporter bio Amanda Morris Washington, D.C. Disability Reporter Education: New York University, BS in Journalism and Media, Culture and Communications Amanda Morris is a disability reporter for The Washington...

There was another group working on an app—maybe Australian? I posted on this a couple of years ago—maybe someone else can remember/locate the thread?

Don’t know anything about this—but in general would prefer treatments over apps. https://www.jupiter-dx.com/ The co-pilot for your chronic illness. Monitor your energy, track symptoms, and receive tailored insights on managing your Long Covid or ME/CFS. By integrating wearables like Apple...

That’s a big building….

It’s an “investigational drug product” !

Thread here: https://www.s4me.info/threads/long-covid-clinical-drug-trial-texas-usa.33379/

Oh Ok thanks—she was in the dara trial.

? Meaning she improved following a viral infection? Or that she was improving naturally and then got an infection which set her back?

Good to hear that they are doing a follow up on the cyclo-treated patients. IIRC the initial response rate was about 50%. If 18% of the initial responders are still responding, then about a third of the initial responders are still in remission or cured. Not too shabby.

updated

https://www.acpjournals.org/doi/10.7326/M22-3473 Comparative Efficacy and Safety of Wakefulness-Promoting Agents for Excessive Daytime Sleepiness in Patients With Obstructive Sleep Apnea Background: Excessive daytime sleepiness (EDS) is common among patients with obstructive sleep apnea...

Ugh!

OK but where is Stop 2? Didn’t he say he was going to the UK meeting as well? ETA yeah this one http://www.investinme.org/IIMEC15.shtml#speakers So hopefully he won’t say that he is going to present the important results at the UK meeting.

https://www.nytimes.com/2023/05/05/opinion/depression-misery-psychiatry-mental-health.html?unlocked_article_code=OpsQQ3jcg5dfkxS7VwgubHN_7gIveSLykpQCtUbMHOUBHwfV0LENExTTvWp5XdogNvzKs53VFJTDmlrqsAqtShwySIgTOqtf6WiJqkpCfjQCc_6x3zeak26v5geD-cMUH5_9MtdFD7V_vratTKUrrepvr5-0q9yuqIZH28HSlnIDiWwGyH6g-fwv...