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Salut! I don't think there are many good answers to that, since in most cases if someone has ME, or was suspected to have ME, and gets diagnosed with MS, everything about ME would simply be chucked out and ignored from that point on. There are simply more and better resources for MS. Fatigue is...

They really do say completely different things depending on the audience. Behind closed doors, there's a lot of that nonsense about secondary gains, malingering and other stuff that, in public, they pretend they have moved on from. This is really all like pretending that alchemy and its methods...

And that's not even hyperbole. I studied political science for a bit. Liked it, but I didn't see a career path. Intro to politics is all ancient Greece politics, who faced the same issues as their ancestors, they were just the first ones to write them down. And they're all the same issues that...

I see this similarly to the old saying about how the future is already here, just not evenly distributed. Some people are on the cutting edge, others are stuck in the distant past, most are aimlessly wandering around. Usually, very few are on the cutting edge, we just got to figure out how to...

That's what I mean. It's not just worth it for us who have been ill for years. It's worth it for every single person who is ill for more than 2 weeks, and I see no reason to think that there is any difference between being ill for 3 weeks, 3 months or 30 years. There is a common factor that can...

I don't see how my opinion was negative. I just don't expect anything soon. That usually holds up perfectly. This industry moves slower than molasses in the Arctic (which on second thought actually isn't always true anymore...). I see it as a good sign, money is probably the only human motive...

Also they want to target concussions and I find it hard to believe that this is not motivated and funded in part by professional sports leagues, who badly want to avoid possible future litigations for their players. The evidence for those harms has been growing but all the leagues are denying it...

"We have positive signs to rule in but also the signs don't really matter, we're expanding to everyone since clearly we got away with pretending there are rule in signs that are used merely argumentatively." And of course it's widely known that distractions work a bit on all symptoms and pain...

Toxic sludge is definitely good for you, say toxic sludge influencers.

Somehow doesn't seem to have the same impact, when comparing the response to NICE vs. to IQWIG, which simply discarded all but 3 trials for being too biased to use. Or maybe since the conclusions remain mostly the same, they just don't care about their work being rated as too poor to even...

I don't think this has been posted. Pfizer published an article about Long Covid. It seems to mostly repeat possible factors from another source, 7 hypotheses behind LC (listed below), but the most significant about this is probably simply the fact that they likely published this because it has...

Maybe it doesn't matter, since so many seem to lead to the same outcome, placing the mechanism in the immune response more than anything. Unless it is a latent pathogen that is simply opportunistic.

Uh, maybe a little more t-cells and a little less therapy after, doctor W?

That's an interesting answer. The question made no mention of ME/CFS, unless it has other unseen parts, and yet they seem aware that they are common together, something that is probably not found in many medical documentation, guidelines or otherwise.

That's one of the things where AIs will be revolutionary. They will be able to analyze the entire evidence. All of it. Every paper and trial ever published, assess their reliability, find the duds, the frauds, the errors, the duplicates, and so on. In seconds. It will take more time for humans...

Literally anything can pass a randomized trial when those running it are biased. We've seen more than evidence of this to invalidate most of this type of evidence.

Nope. I know that it affects how people see men, our perceived value to society is our work, but it has not affected my sense of anything. It really only affects the perception of others, at least in my case. I don't see the point of those studies, they never really reflect the patients'...

Ironically, when I had mine, I had one of the best night's sleep of my life. Fell asleep like a brick, which almost never happens, and never woke up until morning. Totally unrepresentative of my usual sleep. Single points in time are a lousy method of research for something that can vary this...

Post moved from Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al There's a similar dynamic happening right now between some of the major minimizers, the Great Barrington Declaration, and a physician who wrote a book...

Where can we find this response? On their twitter account they only have a graphic saying so and no link to it.