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The German IQWIG report was discussed here: https://www.s4me.info/threads/germany-iqwig-report-to-government-on-me-cfs-report-out-now-may-2023.21266/. I'm not sure about the Dutch thing.

They make no mention that the whiners are the same people whose work has been rated as awful, which is completely unserious. This is extremely relevant, they have huge biases and conflicts of interest listed right below their commentary. And massively distort what happened. They make it seem as...

It's genuinely hard to make less sense than bathroom graffiti, but there it is. This is nothing but thinly veiled bigotry.

If you have a twitter account, I would definitely advise to go and rate it as helpful. You can be certain that our snake oil peddling opponents will do the opposite.

And it's not just NICE. The German IQWIG did the same, dismissed almost the entire evidence base as too biased to evaluate. And a Dutch one, too, I think? I saw someone mention that recently but don't remember it. I guess it's what lead to the funding that's being misused by Rosmalen? IQWIG...

IAPT, too. That's billions per year. This is now a huge industry, employing thousands. An endless stream of no-effort money without ever having to deliver anything. There's a lot at stake.

This idealized version of medicine never existed. It was always what people hoped it would be, but in real life people mostly just do their job as it is required to keep it, never have the big picture or the time and resources to do everything. It's a lot like the fictionalized version of the...

Thanks for the words of encouragement. It's been weird, but mostly disappointing in that I've experienced a slow but gradual reduction in neurological symptoms over the past year and thought I was slowly on the way up. Especially the noise sensitivity has been a blessing. It used to be so bad...

It's fully consistent with widespread beliefs that our "issues" are basically nocebo, or nothing at all, or whatever, therefore placebo is definitely acceptable. Maximizing it is thus definitely optimal, especially as it can do no direct harm, and indirect harms are irrelevant, too hard to even...

All of which, in most cases, is entirely irrelevant since the vast majority of patients will never actually go through a GET program and instead be simply told to exercise, a bit more each time. It is completely cynical and asinine to pretend that how it works in reality is irrelevant. It's how...

Having followed the Long Covid subreddit, and what I saw on twitter, from thousands of comments and hundreds of threads specifically on the theme of "I am recovered", there is one universal theme among them all. It's not about what lead to recovery, what treatments they took, what they thought...

Probably irrelevant, I assumed it would just be brushed aside, but with the admission that the commentary was written in full by White and the rest merely provided a few comments, isn't it a strict norm in academia that only people who worked on a paper, if it qualifies as that, should be named...

I saw a few articles with the same, and I can't escape the obvious fact that the commentary was paywalled so that lazy journalists and editors won't bother reading it and see that it is not, in fact, a study and simply copy what's on the press release. I don't even know how it would make sense...

If only this was restricted to delusional psychology. Almost everyone in medicine we show this to doesn't mind any of it. It's all perfectly good, conforms with their expectations. This is not contained to some fringe corner of medicine, it is establishment dogma not to question any of it. Even...

Well, I clearly was not gentle enough. Or the initial straining and leg pain already set the course, but now I have POTS and am mostly bedbound and severely lowered my already terrible quality of life. WTF is this bullshit?

They're actually arguing that objective activity data is more subject to bias than subjective questionnaires putting indirect questions into an arbitrary score that, in their admission, never match objective data. Even by the standards of politics this would be absurd. There is simply no context...

Oooooh, a finger-wagging. That'll do it.

I will never forget Wessely's answer to someone asking him that about PACE, something to the effect of: "the placebo is one of the most powerful interventions we have". Even though by design and definition, it is the least effective treatment that has ever existed, since every approved treatment...

It's not bad. It's not good either. I guess that's fitting considering we are basically stuck in purgatory. Add time, though, and it's just like leaving people to rot, all while people think they're actually help. The end result is the exact same as full-on neglect.

Oh, cool. Disability porn as entertainment. Basically the charity model, only some get help, but it's systematic. That's just great. Good for Mandy, of course, but this is not how to deal with disability. This is a circus.