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So many MDs confidently asserted there would be no such thing. Wrote editorials with titles like "No, there is no COVID heart". This combination of being completely confidently wrong is truly absurd. Of all the professions to feature such loud fools...

Not sure how it relates, but Prusty's study also flagged p53 as a possible factor: "Subsequent loss of miR-30 and activation of the miR-30–p53–DRP1 axis triggers a profound disruption of mitochondrial architecture.". Selective inhibition of miRNA processing by a herpesvirus-encoded miRNA, 2022...

Possibly relevant, from 2011. No thread on S4ME. New thread on this paper here: Meta analysis of Chronic Fatigue Syndrome through integration of clinical, gene expression, SNP and proteomic data, 2011, Pihur et al _____________ Meta analysis of Chronic Fatigue Syndrome through integration of...

Ror Preston is the lead data scientist at Visible Health. Simon Wessely was president of the RSM a few years ago, which later awarded him for his career's work, including his ideological dedication to suppress the reality of ME/CFS and for pushing the gaslighting behavioral model of CFS. He...

100%. It's a blatant market grab, building up a market for a product they've got warehouses and a huge supply chain of. There are plenty of good apps for meditation that work far better than this junk. CBT is all about thinking and falling asleep is the opposite. And this says everything about...

Noticing this thread... 3.5 years mark. Complete silence for... what at least 1.5 years? Says everything about Cochrane. But at this point I cannot see Bastian as being any better. I think she Garnered us.

BACME is not an authority of any type here. They flaunt their defiance of the NICE guidelines, while pretending to follow them, but will pretend that somehow this lobby group of commercial therapists is an authority worth citing. Good grief this profession...

The group format is completely inadequate for this. And especially hypocritical when this kind of holistic stuff is always sold as personalized. You literally cannot do both. There is no need for in-person presence either, and returning to normal life isn't always the goal. If it's not...

Literally all of the above are things 1) medicine is responsible for, 2) that we have been raising forever and 3) have been constantly vilified for saying even though they're simple and obvious. And they still blame us anyway. Really disturbing, especially that they see the problem, they just...

Technology is not the issue here. They're trying to mix a research study with a pragmatic rehabilitation program when there is zero need to. We know for a fact that this kind of rehabilitation is useless, no amount of technology will change that. We need to understand the physiology here, not...

That's very nice and everything but the simple fact that the vast majority of people don't exercise in a recreational/fitness mode regularly makes it clear that those effects are systematically and heavily overestimated by professionals. If it was so good, people would choose to do so naturally...

And yet it's almost universally recommended. Has been from the start, without any evidence. Because reasons. Clearly the interest was already there, and is utterly irrelevant. This is just an ad for pseudoscience. No controls. This is just an expression of wanting to do something, on the...

Yet again complete nonsense that simply takes cases that medicine doesn't know the cause of and lumps them all under some imaginary conversion disorder. There is no sense or reason to any of it, and the claim of up to 1/3 clearly marks it as a category defined by a lack of explanation, the...

"Lesser-known". Uh, not to patients. It's been reported for decades and systematically dismissed. The LC community was very quick to notice and report it. I get that we need not to antagonize MDs but seriously they have a huge amount of work to do on themselves when it comes to accountability...

And the kicker is that this interest is... them. It's literally their own doing, they're pointing at the surge of work they've done lately as evidence that there's a surge of interest. This is like a financial pump & dump scheme where someone buys a lot of some stock to inflate the price...

I will. Or hope too. POTSy as hell these days.

No kidding but I would put far better odds in this arrangement. There is something seriously wrong with how medicine reasons, or fails to, and what's needed is true scientific inquiry, without bias and able to follow the evidence. Physics is one hell of a serious science.

They got nothing otherwise. It's that simple. None of their stuff passes scientific scrutiny. Not a single bit of it. They obviously understand that. They probably believe that eventually they'll figure it out in a way that does, but they can't back out of what they've done so they keep pushing...

Regardless of other issues, there was a very troubling choice in putting nearly half of the budget towards a single observational study that wouldn't report for years. This guaranteed that half the money, and it really looks like half if we count the hard-to-explain administrative overhead...

Hi Chelsey. Sorry this is happening to you. Please know that many of us understand how hard it is to deal with the politics of ME, how things can get out of hand, and that good intentions can lead to weird reactions. Especially with how much harm the good intentions that frame our illness as...