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  1. rvallee

    Characteristics and multidisciplinary team management of FND, 2023, Rixon et al.

    There's nothing supporting that it's effective. Only their word, which a homeopathic clinic would report just the same. All they do in those reports is describe what they do and any notion of effectiveness has to be taken at their word. Which in the context of psychosomatic medicine is sadly...
  2. rvallee

    UK Government ME/CFS Delivery Plan consultation

    Also, a note on the form delay. It's a credible explanation. It's not the same thing as, say, the Cochrane excuse and their system making it difficult to publish a bit of text. Online forms like this have data behind them. There is security, they have to be tested, the data has to produce...
  3. rvallee

    UK Government ME/CFS Delivery Plan consultation

    There is a very strong case to make that they have been running around in circles for years, and that there is simply nothing left to do. For them or anyone else. Everything they do is just more of the same that they've been doing from the start. It's clearly a complete waste of funding. But it...
  4. rvallee

    Long Covid in the media and social media 2023

    At least, a main focus of Long Covid is really PEM. It makes the fanatical crusade of the ideologues so much more damning, especially with their bleating and whining about the NICE guidelines and backroom manipulations. It is THE feature of our illness. And they focused most of their career and...
  5. rvallee

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Even with the huge imbalance between both groups. They are choosing to harm most of us in order to feel like they helped a few, most of which would have likely improved on their own anyway. Usually the concern over first do no harm is that it's even unacceptable to harm a few in order to help...
  6. rvallee

    Forming a consensus opinion to inform long COVID support mechanisms and interventions: a modified Delphi approach, 2023, Owen, Faghi et al

    It annoys me to no end that every single time professionals put a serious effort, they always reach as conclusions exactly what we have been begging for decades, and it bothers no one that we have been vilified over it. Demanding this has been used against us to justify denying it and...
  7. rvallee

    Review The Microbiome in Post-Acute Infection Syndrome (PAIS), 2023, Guo et al

    Does it really? They don't seem burdened by it at all. Certainly not enough to do anything about it. Expensive, yeah. Especially ignoring it. But burdened? Not really, or they'd actually do something, pay attention and stop denying at the very least.
  8. rvallee

    Review Exercise is the Most Important Medicine for COVID-19, 2023, Torres et al

    They're suggesting it like it's a done deal, while admitting they didn't bother checking. Even though it's already the widespread model. Good grief what is wrong with this profession? It takes zero curiosity or motivation to refuse to find out what is happening to the patients, and a complete...
  9. rvallee

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    :confused: Solid reply. I think that between the various responses, even with most of them not trying to address every single of their points, we will cover most, if not all, of them. Only question is whether truth and professional duty actually matter. But all this press over such petty...
  10. rvallee

    Assessing ‘no evidence of disease activity’ status in patients with relapsing–remitting MS: a long-term follow-up, 2023, Chiara Zilli et al

    And with the FND trend, neurology is heading hard in the opposite direction. Test as little as possible, in fact if possible, don't even test. Wait for symptoms, dismiss them as much as possible. Who knew that being smart about things was, uh, smart?
  11. rvallee

    The ‘Flu Shot Cheerleader’ is back — with a warning about the anti-vaccine movement

    The fact that this keeps happening when it's explicitly forbidden in medical codes of conduct to not only diagnose at a distance, but without doing a proper consult, really should make them think a lot harder about how messed up it is that they keep doing things they're not supposed to be doing...
  12. rvallee

    Cochrane Exercise Review Withdrawn - Individual Patient Data

    Something tells me that such an analysis would be very bad for them, and probably explains why they tried making one that was so biased that it ended up being withdrawn. There is no way it makes the trial looks good. But they did get away with overlapping entry and recovery thresholds so who...
  13. rvallee

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    Yup. And ironically, the same also insist that LC should always be used, itself an umbrella term. I see this future goal of an overarching term in the same sense as autoimmune disease, which doesn't erase the existence of type 1 diabetes or MS. It's not something that should replace ME...
  14. rvallee

    Fatigue in patients with rheumatic and musculoskeletal diseases: a scoping review on definitions,... 2023 Beckers et al

    I would sadly assume: absolutely not. Intellectually they know in some form, but it's purely associative and rote memorization. This is all a consequence of the "one symptom at a time" approach to clinical care that left only holistic models to wishy-washy quackery. When the biology is not...
  15. rvallee

    Evaluation of a Webinar to Increase Health Professionals’ Knowledge about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS),2023

    Sounds right. There must be a standard one for this, though. I assume it must be that. But the biopsychosocial stuff has thoroughly poisoned those perspectives. Although it's not as if those ideas are any recent, we can read them exactly as is from 150 years ago, the only difference is the weird...
  16. rvallee

    News from Scandinavia

    He only deserves part of the blame. We know very well how harshly healthcare systems can stamp down any practices they disapprove. They fully approve of this, it can't be otherwise. This is how they get away with such BS, and get platforms to spew lies like this. They don't even bother adhering...
  17. rvallee

    Exploring the relationship between social jetlag with gut microbial composition, diet and cardiometabolic health, in the ZOE PREDICT 1 cohort, 2023

    It's really demoralizing seeing them aim literally at the ground, so low it's basically not aiming, and somehow missing every single time while calling bull's eye. You are not going to optimize everyone's sleep. The premise is ridiculous to the point of being childish, like when a child...
  18. rvallee

    A qualitative longitudinal study of a health psychological group intervention for patients with ME/CFS, 2023, Keurulainen et al

    Oh yeah completely false. How much does it cost for a 10 minutes explanation the first time someone sees a GP, the sends them to a proper resource that is accurate? If all they're doing is explaing basic stuff like this. So much less than this. They're not even comparing correctly, like when...
  19. rvallee

    Long Covid in the media and social media 2023

    :sick: The problem is not social understanding. It's medical understanding. Specifically because of the psychology-driven belief system where not understood = malingering. This entire discipline completely absolves themselves of the major role they play in continuing this perception, one that...
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