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And the biopsychosocial ideologues make this very claim for themselves. Even though they only ever use their own perception of it. So I don't know what that makes of it, I guess they don't think much of that lived experience and testimony except when they cherry-pick what looks good for them...

This is seriously wild. Despite having completely botched the pandemic, medicine will progress massively from it. It could have regardless, but this really all confirms to me the general pattern that learning, even scientific learning, only happens by accident, by exploring all the spaces. It's...

That's the part I took and that makes sense to me. The rest is a terrible idea.

I meant on twitter from long haulers. I had a more higher level version of it in mind. I agree that this is a bad effort, and it's not entirely clear what is being proposed. I took the more generous interpretation. What I had in mind was more the lead-up to creating a discipline for the various...

Only to replace ME, it doesn't make sense. Oh well. There is a huge need for an overarching category, similar to what autoimmune diseases represent. But it makes no sense to just rename ME, that is a dead-end. IMO that supercategory would eventually absorb the concept of autoimmune diseases...

Why does this stuff keep getting funded when literally every single damn paper says exactly the same thing? Psychological medicine has become nothing but a paper-publishing churn, has zero concern with any level of usefulness. With only tiny differences, every single patient group has the exact...

There was a huge drumbeat from the start to fully separate anything LC with ME/CFS or any existing known illness. It probably ended this very quickly, with lots of very angry experts saying they would have nothing to do with this. Although ironically, the only people who did accept that overlap...

Group sessions are cheaper. Only reason they're so popular. Healthcare has the same optimization approach to make everything cheaper per patient. It makes sense in a general sense, just not here because they're dividing by zero anyway.

Of all the arguments, this is the most ridiculous one. No one is missing out on anything, no patient would ever be advised to avoid exercise entirely, it literally never happens and even the guideline makes it explicitly symptom-contingent. This is completely clownish and they know that plenty...

Oh definitely on cheaper devices there will be a larger difference. But other than expensive gaming mice, many touchscreens are actually faster than a regular mouse. Especially smaller screens. It's not just glitches or anything like that, the sampling rate is an engineering choice based on costs.

Good grief the comments are so sad. Sorry but people are missing the point here. This isn't about replacing the terms, although many of them are awful, but giving them proper categorization. It's a freaking wild west out there for now. Talk about a community that is so talented at kicking...

This looks rough and not very solid but there is a need for an overarching name that is universally accepted. Inevitably this will need to become a specialty of its own, at least comparable in size to neurology and with its own research institute, from the perspective of the NIH model. Whatever...

I like the honesty here. You don't succeed when you don't try. Although: Really doesn't align with: This is not billions of dollars worth of research, or clinical trials. Not even close. Even on the research side it's mostly mediocre, with a huge amount of clearly denial-based efforts to...

Yikes. Someone sees a very different image of themselves when looking in a mirror.

Easily. Nothing alike. Although this still, somehow, actually deserves to be explained. I just hope they do it well.

This is the right move. It may fail, but they are making a mockery of the whole process and the language that obligated them to... literally do the opposite of what they did. This is highly corrupt malfeasance and it must be challenged to the hilt.

Worth trying again and putting some pressure, with the added "you said so last time". These things can be frustrating to make happen but once the door is open it becomes easier.

Medicine is the only discipline where they will see their tests fail and be unable to think that it's their tests that are obviously inadequate. Do they really actually think that they have all the objective tests for all the things? They clearly know better, so why do they pretend here...

I checked and touchscreen sampling rates are fairly close to what most computer mice have. Shouldn't be much more than a 10-15ms difference, and there is a difference with the quality of mice as well so there's variation all around. It's usually between 5-20ms in both cases.

If it's not a great example of how much brain fog impacts us, I don't know what is.