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  1. rvallee

    Cardiopulmonary Exercise Testing in Post-COVID-19 Patients: Where Does Exercise Intolerance Come From? 2023 Milani et al

    The data do not, actually, suggest that. The researchers are suggesting that. Somehow. And they basically completely ignore the patients' experience, or basic reality. I guess this means medicine basically doesn't actually know anything about deconditioning at all? If they can't ever tell the...
  2. rvallee

    News from Canada

    Anyone else noticing the trend where it's all POTS, and only the tachy part, and the broader issue of dysautonomia is being drowned out entirely? Because the way it looks like, it would be only POTS, and only about the tachy part, and everything else would be ignored like it doesn't exist. This...
  3. rvallee

    Evidence-Based Mind-Body Interventions for Children and Adolescents with Functional Neurological Disorder 2023 Kozlowska et al

    Yeah, reading through this was my exact reaction. Is this supposed to be a paper? This is not a scientific paper. Why is an advertorial being passed as an academic paper? The use of "evidence-based" in the title would be a laughable trick if this wasn't so devastating. As mindless as sticking a...
  4. rvallee

    Comparison of mental health symptoms before & during the covid-19 pandemic: evidence from a systematic review & meta-analysis of 134 cohorts 2023 Sun

    Yeah, that's evidence-based medicine. It's always this way. The only context where bad evidence gets used anyway. Somehow, hardly anyone objects. I went looking for that. Appears to be described in the supplementary material. Best I can tell it's a mix of about a dozen generalized anxiety or...
  5. rvallee

    Anti-ganglionic acetylcholine receptor antibodies in functional neurological symptom disorder/conversion disorder, 2023, Nagata et al

    The conversion disorder stuff simply appears to be stacked on because reasons. Criteria were for neurological symptoms and a lack of diagnosis, it's just that the DSM criteria for "conversion disorder" are circular and basically apply to everyone with a neurological condition, the only exemption...
  6. rvallee

    Long Covid in the media and social media 2023

    Somehow, this was put under a mental health heading. I guess being mistreated is mental illness? Almost all. What an embarrassment. Literally, they put the mistreatment, negligence and gaslighting from healthcare services as mental illness. Not from the illness, though, it's just what we...
  7. rvallee

    News article about long covid research at Karolinska University Hospital, Sweden

    Literally none of this alleviates symptoms. They're really just describing that some people improve naturally and falsely attribute themselves some merit, the rest is potential research or entirely equivalent to: "so, you lost all your income, so, uh, don't spend on anything, good luck and don't...
  8. rvallee

    Abi Burton: 'I nearly died' - the Olympian wrongly sectioned and fighting back from an induced coma

    It's beyond clear that they cannot tell the difference between "physical" illness and "mental" illness. And yet this separation still has absolute unaccountable power over us. They can't tell when it's mental illness, and they can't tell when it's not. The process is as arbitrary as it can be...
  9. rvallee

    Getting back to normal? Identity and role disruptions among adults with Long COVID 2023,Spence et al

    A case where "may" actually should be "100%". Literally everything else is secondary, and this: is not even secondary, it's not even something you can do, and pretending otherwise is a large part of why everything is broken and people are needlessly suffering. The crap about this being a...
  10. rvallee

    Temelimab

    It really needs to be emphasized how important pharmaceutical profit-seeking will be for us. Oddly enough. One common issue with developing drugs that cure conditions is that it's terrible for business. Businesses are all about regular, stable cash flow. Making a boatload of money that then...
  11. rvallee

    Long COVID—six months of prospective follow-up of changes in symptom profiles of non-hospitalised children and young people.. 2023 Stephenson et al

    Not especially compelling or rigorous. Even the first Body Politic study was better than this, let alone the second one. I don't know what a "wanted" symptom is. I don't think that's a thing. I don't know why they mention a thing that isn't a thing. The conclusion is odd. It seems to consider...
  12. rvallee

    Functional neurological disorder: Clinical manifestations and comorbidities; an online survey 2023 Ducroizet, Edwards et al

    The whole "functional overlay" nonsense says it all. If they had their way, illness would be banished from medicine, only disease matters. Everything else, all your symptoms and suffering? Emotional distress, and nothing else. Symptoms have to be blessed as real by a medical priest, on the basis...
  13. rvallee

    Using Data Mining and Time Series to Investigate ME and CFS Naming Preferences 2023 Bhatia and Jason

    That would understate the fact that there is no need for exertion to feel ill and awful all the time. Lots of people struggle precisely with the "but I didn't even do anything! why am I crashing?!" Not that things are any better right now, but there is a lot of misunderstanding that leads to...
  14. rvallee

    Renaming the disease: who calls the shots?

    There doesn't really seem to be a process for this, other than a popularity contest, aka "consensus". But we have to meet people half-way who recognize nothing of it, so it's not realistic. You can't meet delusions mid-way. Personally I think that everything needs a total reset, I doubt much...
  15. rvallee

    Low-level tragus stimulation improves autoantibody-induced hyperadrenergic postural tachycardia syndrome in rabbits 2023 Guo et al

    I see a lot of trials to "stimulate" this and that nerve, but there doesn't seem to be much basic knowledge about the general mechanism happening here. Seems a bit Frankenstein, pour some electricity and see what happens. Except it's more add electricity, then look if it affects a specific thing.
  16. rvallee

    Long Covid in the media and social media 2023

    Why does he keep saying they know about this when they clearly don't? That annoys me so much. No, you are not familiar with this. WTH? And you can't treat symptoms because medicine only knows how to do that when they know the biological mechanism. FFS get a grip about what you're working with...
  17. rvallee

    Long-term gastrointestinal outcomes of COVID-19, 2023, Evan Xu et al

    And those are just recorded diagnoses. The vast majority of GI issues, IBS type mainly, are not recorded. They're likely in the "functional" label here, but only a fraction. So this massively undercounts the issue, likely 4-5x over. Not surprisingly, also massively gaslighted. Never has a word...
  18. rvallee

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    One interesting thing once a breakthrough happens will be to establish when this could have been figured out given the level of technology and the hypotheses at the time. If only there had been some will. Or maybe a better legislative framework that doesn't allow for this negligence. I'd be...
  19. rvallee

    Long Covid in the media and social media 2023

    They are acknowledging some mistakes they made. They were told all about those mistakes from day 1. And pretty much constantly the whole time. Very precise and accurate warnings. They're the same mistakes that failed us for decades. Repeated again for the same reasons. Many LC advocates pointed...
  20. rvallee

    BBC article: Are Iranian schoolgirls being poisoned by toxic gas?, 2023 (quotes Wessely)

    Reports mention difficulty breathing. Not being able to breathe is definitely what the crude idea of the "fight-or-flight" system is all about. You have seconds to act. Acting fast is critical to survival. There are gases that are very good at making breathing impossible, they are meant to cause...
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