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  1. rvallee

    Effects of structured exercise program on severity of dizziness, kinesiophobia, balance, fatigue .. in bilateral vestibular hypofunction, 2023, Genc

    Physics basically like: there's 1 chance in 10 million this could be a fluke so we will reserve judgment until we get better results. While doctors are like: yeah we think it's alright and probably because of the explanation we like best
  2. rvallee

    Functional Neurological Disorder - a common reason for a neurology inpatient referral, 2023, Ramsay, Stone et al

    None of this validates whether the diagnoses are correct. All it says is that it's become so easy to be lazy about it that it can easily become the most common diagnosis, regardless of validity. Which is really damning.
  3. rvallee

    Long Covid in the media and social media 2023

    The NIH has a community engagement account. A few days ago it posted a ridiculous "talk to your doctor about Long Covid for a treatment plan", and got massively criticized for spreading fiction. And in response, their community engagement has been to hide replies. Not sure if they know that...
  4. rvallee

    Long Covid in the media and social media 2023

    The business press continues to provide far better coverage than the health and medical press, which are almost entirely ignoring Long Covid. Simply stunning dereliction. Meals skipped, lights shut off: Long COVID linked to severe financial strains, researchers say...
  5. rvallee

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Sadly, I doubt anyone would care. I definitely still want this list to be accurate, but I fully assume that no regulatory body, or even minor institution, thinks there's anything wrong with this. They think this is what we deserve. For sure it will eventually look corrupt and awful, and I want...
  6. rvallee

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I don't see mention of Wessely's conflict being part of PACE, despite his false claims otherwise. Doesn't appear to note that Jon Stone and Alan Carson are on the editorial board of the journal that published their own letter. This very long list of conflicts is clearly incomplete. I assume...
  7. rvallee

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Oh, I do far more than merely doubt it. They have removed all reasonable, even possible, doubt with their behavior over the years. However I'd note that this isn't about outside pressure, it is clearly inside pressure since some of their own are on the editorial team, and nearly everyone else...
  8. rvallee

    Ed Yong Articles on Long Covid & ME/CFS

    It also has plenty of good quotes from Keller, Systrom, Putrino, and probably a couple I'm forgetting. The difference is that it's about illness, not the medical conception of it, but who else but the patients would know that anyway? Doctors love to say that patients are the experts on their...
  9. rvallee

    News from Australia

    As long as this industry keeps making money they won't stop. It's careers now, huge income for zero effort work. It's held out long enough that it's very clear that results are entirely irrelevant. It's all about image, about pretending to be doing something.
  10. rvallee

    News from Scandinavia

    That's very much the same as trying to be racist without being offensive. You can't, because you're wrong. And yeah, all they achieve is doing both in the end. Genius level stuff. And wow is there a lot of debunked nonsense in there, especially the thing about attitude influencing outcomes...
  11. rvallee

    Fatigue and physical activity patterns in children with Inflammatory Bowel Disease, 2023, Bevers et al

    It's quite possible that there is no way to assess fatigue biologically simply because it is not one thing, in the same vein as "this very complex machine is not performing adequately" can have multiple reasons and generally requires a more precise explanation as to exactly what is not...
  12. rvallee

    HHS Urges Primary Care Clinicians to Help Patients Manage Long COVID’s Mental Health Symptoms

    Putting fatigue under mental health is so ridiculous. It's fine to help people suffering, but without addressing the causes this is worse than useless, because the suffering is considered to be its own cause. I also would refuse to discuss anything related to mental health, if I hadn't...
  13. rvallee

    Effects of Nature-Based Multisensory Stimulation on Pain Mechanisms in Women with Fibromyalgia… 2023, Gungormus, et al

    And wow is the competition for this ferocious. It's truly a race to the bottom with this ridiculous ideology.
  14. rvallee

    Effects of Nature-Based Multisensory Stimulation on Pain Mechanisms in Women with Fibromyalgia… 2023, Gungormus, et al

    If you can genuinely blind people to being out in a forest, you may be a wizard. Except it's way dumber. Just way, way dumber than this. They just made them "interact" with things. Good grief exactly how low is their opinion of patients that they think this is serious? This gets pretty close...
  15. rvallee

    A general thread on the PACE trial!

    A good example of the scientific (and engineering) principle that you can't understand what you don't measure. Sure enough, they can't measure it, and understand nothing of it.
  16. rvallee

    Lancet: Where are the long COVID trials?

    Good to see this in the Lancet, but it is sorely missing the very significant, and stubbornly continuing, role that the Lancet played in this. They could radically change this by retracting PACE. A good example of the head and the hands not talking to one another. Still, this is frank.
  17. rvallee

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    They went with a BS excuse of inflammatory language. These people are not polite to us. They make actual inflammatory claims about us seeking secondary benefits and cause us actual egregious harm. Even their own letter is inflammatory to NICE and the people who were involved in the guidelines...
  18. rvallee

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Is this conflict of interest declared in the very long list of conflicts of interest? Because approving your own letter, about your own work, is just so many layers of bias and conflict of interest. As ridiculous as a judge declaring themselves innocent for a case they judged themselves, about...
  19. rvallee

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    WTH is "bad nerves"? And way to attribute the blame to mental illness by putting depression and anxiety prominently, as if chronically ill people whose lives have been turned upside down don't rate high on the questionnaires for multiple reasons, all of which are perfectly normal. Pretty much...
  20. rvallee

    Long Covid in the media and social media 2023

    Latest CDC data (July 20) show an increase in Long Covid, with about 1/4 having significant limitations. Unless I misremember it, a UK survey found a similar increase. https://data.cdc.gov/NCHS/Post-COVID-Conditions/gsea-w83j
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