As the title says.
How???
I've been getting through so far because I'm prescribed zopiclone which I'm allowed to use a maximum of twice a week. The *very hot* weather this summer has so far happened in short clusters of days, so I've been able to use zopiclone for all the really hot ones...
Cognitively - boredom.
Sometimes in order to avoid PEM (in severe patients), you need to do nothing and think about nothing. This is not possible if you are awake.
It's essential that they know that it *could* be ME or that it could end up as ME, and that they mustn't overexert themselves, because if it is ME then overexertion will destroy them.
Funny thing is, when I started thyroxine, and every time my dose was increased, I got the improvements in my symptoms within a couple of days. And after a few days, I had reached the maximum improvement that I got from it - my symptoms didn't get any better than that after being on the dose for...
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