Search results

GP Online: Reworked NICE advice on ME/CFS warns against 'one-size-fits-all' approach By Nick Bostock, 29 October 2021 https://www.gponline.com/reworked-nice-advice-me-cfs-warns-against-one-size-fits-all-approach/article/1731825

Lack of access, time constraints, no necessity to check copyright status.

Thread here: https://www.s4me.info/threads/getting-better-photos-into-me-media-stories-anyone-know-a-photo-editor.23034/#post-386298

They likely have licenses for obtaining stock images from providers like Getty. Cheaper than paying for individual photos.

A Register of Interests document has been published on the Guideline History page since this morning: https://www.nice.org.uk/guidance/ng206/history Register of interests PDF 1.12 MB 29 October 2021

I daresay that patients with MS or Parkinson's and many other conditions get similarly pissed off with the media's choice of stock images.

As I've added to my comment: Perhaps the orgs could maintain a stock of copyright free images to make available to the press. I wouldn't describe it as "deliberate contempt" rather a lack of imagination and time constraints. Different if it's a feature article. But as I say, press releases...

Not saying it's ideal - it's not; but using stock photos is quick and cheap for the media. Press releases went out yesterday. Not a lot of time to organise photos of actual patients. Perhaps the orgs could maintain a stock of copyright free images to make available to the press.

Thanks, Lucibee. I have now been able to access this the thread.

I have emailed NHS Digital's Elaine Wooler CC: Lynn Bracewell (no longer works for NHS Digital) and Sheree Hemingway (shortly to cease working for NHS Digital) (NHS Digital Terminology and classifications) with this query. Edit: If Ms Bracewell is unable to advise, I have asked that my query...

Have we got this (I'll remove if we have). BACME Press statement: https://www.bacme.info/sites/bacme.info/files/BACME Press Statement NICE Guideline publication Oct 2021.pdf The new NICE Guideline on ME/CFS was published on 29th October 2021 This is BACME’s response to the publication...

Copied from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion Have we got this (I'll remove if we have). BACME Press statement: https://www.bacme.info/sites/bacme.info/files/BACME Press Statement NICE Guideline publication Oct 2021.pdf The new NICE Guideline...

Nothing that I can see yet from BMJ. But I'm sure there will be.

On the Guidance Overview page: https://www.nice.org.uk/guidance/NG206 what is the significance of the Royal College of Physicians logo at the bottom of the page, above the "NICE accredited" logo? I've had a look at some other recently published guidelines and some just have the "NICE...

That's Sharpe. I like Tweetle Does and Tweetle Doesn't. My son used to have two stuffed rabbits - one he named "Squeak" and the other one he called "Doesn't". White is back row, 5th from left. Sharpe might be back row, 2nd from left (it's an old photo). Not sure who that shifty looking guy...

Can't access this. It says I need to be logged in, although I am already logged in.

Has a copy of the NICE media release that went out yesterday been posted on the NG206 pages? I've not so far been able to find a copy?

Pretty sure the lovely PDW doesn't do Twitter, though Prof M Sharpe does. ETA: Sharpe does not have me Blocked. He's said nothing yet re publication of NG206.

https://www.nice.org.uk/guidance/cg53 Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): diagnosis and management Clinical guideline [CG53] Published: 22 August 2007 Guidance This guideline has been updated and replaced by NICE guideline NG206.

Once a guideline has been published, the Key Events Timeline is taken down. So I took the precaution of taking a screenshot of how the timeline stood on 27 October: