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  1. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    There are now several threads and sub threads around the development of the guideline. When the guideline and its associated documents and resources are finally released do the mods intend that a new thread will be created or is one of the existing threads earmarked for posting and discussion...
  2. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I agree. I very much doubt we will see the finalised guideline and associated documents and resource materials this side of the weekend.
  3. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    That would mean that media releases would have to have gone out late yesterday afternoon or early today.
  4. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Well enough in advance of announcing the postponement on 17 August, for press releases not to have already gone out.
  5. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Wasn't Sir Frederick Barclay (of the Barclay twins) said to have had ME/CFS?
  6. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I wonder what odds Ladbrokes would give on it not being released until next week?
  7. Dx Revision Watch

    UK House of Lords/ House of Commons - relevant people and questions

    I am confused about what you mean by "this appears to be released in September 2021" and a screenshot of Google links...
  8. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I sent Follow-ups via WDTK on 10 October, 21 October and again, this morning. By tomorrow, my (very brief and simple) request for 3 dates will be 28 days overdue and I have still not been given any date by which it will be fulfilled. It would not have taken more that a few minutes to obtain...
  9. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Yep, set up this morning. Am also set up for "as it happens" Google News alerts.
  10. Dx Revision Watch

    Open Functional microbiome study (Stanford)

    I agree; I don't know why MEAction would make it harder for folk to copy text from the site. I also think they need to give more consideration those with visual problems. Trying to read white text reversed out of bright red, doesn't make for the most comfortable read.
  11. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    A reminder from the Development Process and Methods Manual [PMG20] of the launching and implementation stages following publication of a guideline:
  12. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    House of Commons Written Questions: https://questions-statements.parliament.uk/written-questions/detail/2021-10-20/59949 Question for Department of Health and Social Care Chronic Fatigue Syndrome: Exercise Alex Sobel Labour, Leeds North West UIN 59949, tabled on 20 October 2021 To ask the...
  13. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Do you mean this section, Lucibee? (Taken from the Nursing Practice copy as I can't see all the PULSE article now.)
  14. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    If you’d like to get in touch, please ring or email our helpline or use the contact form. Email: helpline@wames.org.uk 029 2051 5061 Chair Jan Russell jan@wames.org.uk Youth and Care Officer, & Media Contact Sylvia Penny 029 2051 5061, sylvia@wames.org.uk Volunteering Coordinator Sharon...
  15. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    The 21 October 2021 article on Nursing Practice has reiterated the text from the PULSE article! https://www.nursinginpractice.com/clinical/vaccinations-and-infections/nice-to-publish-delayed-me-guideline-after-meeting-next-week/?
  16. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Looks like WAMES has uploaded a PDF to its site's files area (which if its a WordPress platform makes the file publicly accessible - if you have the file path for an individual file) and Pulse has linked to the wrong document.
  17. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Yes, my understanding is that it was a direct FOI (and it does not appear to be on the WDTK site). But it hasn't been disclosed (as far as I am aware) that a copy of the embargoed August 8 guideline (or any later dated iteration) had been requested and had been provided.
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