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  1. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I think Pulse has got that wrong (about the guideline having already been released via an FOI). NICE has not resumed fulfilling overdue FOI requests. Mine is now 26 days overdue with still no response to two follow up requests for an ETA for fulfilment. Several others that are also long overdue...
  2. Dx Revision Watch

    UK - Resources for help getting food during quarantine and other supermarket related problems

    We were able to finalise an order this morning for collection tomorrow and our Favourites were available this morning using Chrome (which Tesco has told me in the past that their site is optimised for). I've just checked using Opera, which is the browser I prefer to use for everything else and...
  3. Dx Revision Watch

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    No, they won't give up. And this is why (unlike Jo) I think Sharpe, White, Chalder and friends will have a counter piece in the BMJ ready for when the guideline is finally released, or within a week or two following publication.
  4. Dx Revision Watch

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Yes, the site is back up again this morning. We've done a Click & Collect for the whole week's shopping for three adults every week since the start of the first lock down, although this last three weeks a neighbour is collecting for us as my husband is currently not driving due to a health...
  5. Dx Revision Watch

    UK - Resources for help getting food during quarantine and other supermarket related problems

    https://www.theguardian.com/business/2021/oct/24/tesco-website-hit-by-hackers-leaving-thousands-of-customers-frustrated
  6. Dx Revision Watch

    UK - Resources for help getting food during quarantine and other supermarket related problems

    You can request to cancel an already booked delivery or C & C via @Tesco on Twitter but you may have to wait a while for a response asking you to Twitter DM your details. Some customers who have ordered 3 or fewer items as a holding order for a delivery prior to finalising their order are...
  7. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    There are no Minutes of Executive team (whose membership overlaps with Guidance Executive) meetings posted more recently that the Minutes for April 2021: https://www.nice.org.uk/about/who-we-are/executive-team/executive-team-meetings The meetings in January, February, March and April 2021 all...
  8. Dx Revision Watch

    [Blog] BACME, NHS ME/CFS clinics shift from deconditioning to dysregulation model of ME/CFS in anticipation of updated NICE Guideline

    According to MEpedia: Murphy was appointed to the NICE guidelines review committee for ME/CFS in November 2018, a controversial appointment given her work on the PACE trial, and opposing the release of the PACE data to patients and scientists, along with the other members of PACE trial...
  9. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    The podcast and transcript are also on the BACME site, here: https://uk-podcasts.co.uk/podcast/let-s-talk-about-cbt/cbt-for-chronic-fatigue-syndrome
  10. Dx Revision Watch

    Open Functional microbiome study (Stanford)

    If you left click with your curser at the beginning of a paragraph, then move across and down the lines of text (as though you were selecting the text in order to copy it) to the end of the text, then right click and select: Copy (it won't appear highlighted), for me the text of that selected...
  11. Dx Revision Watch

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Some of you who are old enough may recall that Aaronovitz had been part of the University Challenge team where the team members answered "Trotsky" or "Marx" to every question. According to Wikipedia: "Aaronovitch is the son of communist intellectual and economist Sam Aaronovitch,[2] and brother...
  12. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    It may depend on how many times you have accessed the page. I was able to view the article at least twice; the next time I viewed it a log in was requested but the site is currently not accepting my longstanding log in and password. I'll try clearing PULSE cookies and see if I can access again...
  13. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Yes, I found this also. I was able to access the page twice, then it asked for a log in or registration. I do have a registration for PULSE, but today, it would not recognise either my email address or my password.
  14. Dx Revision Watch

    Functional Neurological Disorders - discussion thread

    And the Dissociative disorders and conversion disorder have a long classificatory history. See: https://www.indjsp.org/article.asp?issn=0971-9962;year=2018;volume=34;issue=5;spage=44;epage=48;aulast=Malhotra Dissociative disorders: Reinvention or reconceptualization of the concept? section...
  15. Dx Revision Watch

    Functional Neurological Disorders - discussion thread

    Prof Raad Shakir, a former President of the World Federation of Neurology, lobbied the WHO long and hard with Stone et al to have a functional neurological disorders category block moved from under the ICD-11 Mental, behavioural and neurodevelopmental disorders chapter and relocated under the...
  16. Dx Revision Watch

    Functional Neurological Disorders - discussion thread

    Inconsistent? https://rarediseases.org/rare-diseases/fnd/ (...) Are MS and PD considered "rare diseases"?
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