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Does anyone know when Novavax plans to apply for approval in UK? Will it be in time for autumn boosters? Has UK bought any Novavax?

Attached link discusses some of the issues around immunodeficiency and taking the vaccine. https://primaryimmune.org/news/forum-addresses-covid-19-vaccine-questions edit: removed sentence

The tweets I read didn't say but I don't think I had access to the whole thread. I have appreciated those with ME sharing their response because I think our immune systems may differ from patients in the trials. I think I've been using 'immunosuppressed' and 'immunocompromised' interchangeably...

@Brian Vastag has tweeted, retweeted by @dave30th See new Tweets Conversation Brian Vastag @brianvastag · 4 Aug "Note to other immunosuppressed folks: Just got word from my doctor that I have no antibodies to SARS-CoV-2 despite getting the J&J vaccine in April. If you want to know if...

I agree the LC group are going to need to be careful about what 'treatments' are developed for their illness and that they are at risk from 'certain parties'. But currently I think they are recognised as being physically ill in the news media etc, examples being the number of prominent figures...

I have signed it on the grounds that the petition asks for the same level of research funding and recognition as long covid, not the same research. I don't think this will be sufficient funding but it is further on than we are now. I think the 'recognition' point is relevant because long covid...

On MEA fb page a short time ago, Dr S , in response to a question said that while Nice is continuing its work without the 3 members who have resigned "it will clearly be more difficult for Nice if there are any further resignations."

Thank you for posting this @Wyva,, particularly with such detail about side effects. I have had 2 AZ vaccines, have seroconverted but with very low antibody levels. My GP has told me that I will need the proposed booster and that it will be Pfizer. He has also now said he considers me...

@yME I see Professor Mortimer and team at St.George's Hospital in south west London. Once diagnosed, there seems to be little treatment apart from compression garments, which involves being measured twice a year and fitted for compression. https://www.lipoedema.co.uk/membership/. I don't know...

I came across the following. Liposuction for chronic lipoedema is being considered by NICE. It is not something I have been following but there is a link below to register an interest. Home NICE Guidance In development Liposuction for chronic lipoedema In development [GID-IPG10190]...

I found a link to the Norris lab where the work is being done. It describes the work in more detail. https://medicine.musc.edu/departments/regenerative-medicine/research/norris-lab. Above link describes the lab as working on Ehlers Danlos-h and also aortic and mitral valve heart issues. When...

I wonder why people who have Pf vaccine have to remain for 15/30 minutes depending on the centre in order to pick up any adverse symptoms. I presume the symptoms that were picked up in the early days with a few people having Pf were different from the symptoms experienced by those in this...

Thanks@rvallee- I was hoping to read the details of the 2 cases-only 6 lines of case 1 accessible unless there's a way in that I haven't found.

@rvallee - can you tell me how you accessed these case reports?

Help please! I would like to read these case reports. Is the only way to subscribe to neuro.psychiatryonline.?

Some discussion on people who are not producing many antibodies in response to the vaccines. Many of these people are taking an immune suppressing drug for conditions like lupus. Discussion includes taking a third vaccine, continuing precautions like masks, and whether there may be "off target...

Good wishes @Wyva. Hope you can sort this out.

Thanks for this @Snow Leopard. I have been reading a little about antibodies (nothing that is conclusive so I haven't kept the references) but there have been references to some people only producing a few antibodies with the clear implication that these these people are not as well protected as...

Have just learnt that Clare Gerada plus a male were on the Radio 4 Today programme this morning about 8.50 answering questions from listeners, about the Government's recent statements on covid, long covid and whether she will wear a mask. No mention of ME reported. Focus on withdrawal of...

Very sorry to hear you are having such a strong reaction @ukxmrv. I hope you improve soon.