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This is so weird...............the variability of our reactions. At first I didn't want to write much about my reaction because it was so alarming. I had severe reactions for 8 weeks after AZ1 but am doing well after AZ2 which was 6 days ago. I reacted with throat swelling about an hour and a...

Done. Much appreciation @David Tuller

I responded too, posted here somewhere. I remember so clearly because I was in Venice celebrating our 50th wedding anniversary when I read it, and lay on the bed composing my response. That's one consequence of ME. You may struggle to do a very special thing like visit Venice and then have to...

I think it was in the responses to that interview that George Monbiot asked why patients wouldn't want research on their illness, and if my memory serves me which it often doesn't now, it was in March 2019. It generated a lot of discussion in the comments and a couple of us responded to George's...

I have posted it on my facebook page and will send it to my MP. This news has the potential to reach wider than the ME community imo.

I think the Zoe study shows this too. AZ worse side effects with v1 and Pfizer with v2.

@Jonathan Edwards "I am afraid I strongly suspect that is designed to reassure for political reasons. The default assumption in the absence of evidence (as you point out) is that any procoagulant state like taking the pill or having Factor V Leiden or anti-phospholipid syndrome would be...

Not my direct experience but thrilled to hear a couple of hours ago that my son received his first vaccine dose today in New York. It was the Moderna, delivered by his local pharmacy across the road. Just a sore arm 5 hours after vaccination. Covid rates are soaring in some parts of the US...

Mr B and I had AZ eight weeks ago administered by the same nurse as consecutive patients. He had a sore arm for 10 minutes. I have still not reached my normal and the severe symptoms I have are different from and in addition to my usual ME symptoms. Sorry you are experiencing the same @ukxmrv...

I began using the SIGHI diet list noted by @Daisy in #29. In my case it was to try to prevent a recurrence of an anaphylactic reaction and angioedema probably related to mast cell issues. It helped to stabilise things quite well, no recurrences and I gradually expanded food choices again but...

https://www.irishtimes.com/business/health-pharma/astrazeneca-reports-slightly-lower-efficacy-of-76-for-covid-19-vaccine-1.4519848 AZ has reported a slightly lower efficacy rate of 76% (not 79% as initially reported) to the US monitoring board. It still reports 100% effectiveness against severe...

The Financial Times on the current issue including comments by Dr Fauci https://www.ft.com/content/24090cf8-9b6c-45b9-9a8d-41ca2450194d eta: apologies if you can't access this. I got full access first time (no subscription) but not when I tried to review it. Hope they are allowing each person...

Is this the trial that Hilda Bastion referred to when she wrote that there was " a strong trial in progress" in relation to AZ vaccine? I think I saw the comment under the diagram drawn up by H B and posted earlier in the thread.

https://www.bbc.co.uk/news/health-56479462 US trial confirms safety and efficacy of AZ vaccine. 32,000 participants in US, Chile and Peru with 20% aged over 65. eta: 79% effective against symptomatic infection and 100% effective against becoming seriously ill is reported. Phase 3 trial results...

I'm very pleased for you @Kitty. What a quick response. I hope that you get well fitting compression that are manageable to use. Would be interested to hear how you get on. I have an appointment for compression and a doctor consultation in April. No idea if it will be f to f or video...

For more detail on side effects of Pfizer and AstraZeneca vaccine, see details of Zoe study #282. Results report more symptoms with first AZ than second and reverse for Pfizer.

I think the webinar covers this @Trish. ( If I remember correctly- I only watched it yesterday!) You are covered even without having strong side effects.

I too liked the fact that ME was specifically acknowledged- I should have said that earlier. @arewenearlythereyet . Severe brain fog. I didn't focus too much on the diet but just have a recollection that Prof Ellie emphasised the importance of having the jab even if you couldn't follow...

Good luck with the side effects, if any, @arewenearlythereyet . The data is showing reduced side effects after second jab for oxford which is good. We had Oxford and Mr B had no side effects for his first dose - I should correct myself- he had a sore arm for 10 minutes. I was not so lucky...

The Zoe study on covid vaccines and the immune system which I registered with (but have failed to log my reactions consistently- I do have my own notes but hadn't transferred them) has published data suggesting that side effects are more severe after first Oxford vaccine dose compared to Pfizer...