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  1. Sasha

    Special screening of Unrest for MPs and honoured guests - oct 24

    Anything to report from this, @Jonathan Edwards?
  2. Sasha

    Cellular bioenergetics is impaired in patients with CFS (2017) Tomas, Strassheim, Newton et al

    @Cheshire, thanks for posting, but would you mind taking that out of quotes? It's very hard to read as a block of small italics. (Don't know if you can break the paras up a bit, if that's not taking an inch and asking for a mile. :)) Edit: Perhaps you could copy @Luther Blissett's kind...
  3. Sasha

    Tip for people who can't swallow large capsules

    I think you can also buy a special tamping tool for extra (unless that's another company's version I was looking at), which I think would give you more accuracy. Perhaps that's how they do it at factories. The way I'll be using it (decanting one cap at a time, to make sure of the dose), it...
  4. Sasha

    Tip for people who can't swallow large capsules

    Not sure where else to put this item! Many people have problems swallowing large tablets and capsules. As far as capsules go, it's possible to buy empty gelatin capsules on Ebay, Amazon, etc. so that you can open your own large capsules and decant the contents into them and swallow several...
  5. Sasha

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    This thread includes posts on general news from the CDC and ME/CFS news including stakeholder calls. Several threads have been merged.
  6. Sasha

    Jen Brea talking about Unrest on GMT BBC World News

  7. Sasha

    ME is not a functional disorder: ME Association 13,000+ petition sent to NICE

  8. Sasha

    Using Heart rate monitoring to help with pacing.

    I think (damn you, memory!) that the lower AT has been established by researchers/clinicians. The data may be in those CPET papers - the Workwell etc. stuff.
  9. Sasha

    Using Heart rate monitoring to help with pacing.

    IIRC, that for PwME, it's likely that the normal age-based calculation is likely to overestimate our aerobic thresholds, possibly considerably. I'm sorry I don't have a reference for that!
  10. Sasha

    Hypothesis piece by Amy Proal, a microbiologist with ME/CFS

    I think a lot of us would be interested in hearing more about that, to the extent that you're able to talk about it. New thread, maybe? :)
  11. Sasha

    Unrest film - Jen Brea

    Thanks, Andy - I forgot to put that in and I've edited my post to say so.
  12. Sasha

    Unrest film - Jen Brea

    Haven't listened yet but should be interesting: http://www.bbc.co.uk/programmes/p05j3qr6#play Edit: Jen's bit starts around 2:20.
  13. Sasha

    Presentation Summaries from Solve ME/CFS Discovery Forum October 2017

    Very well worth reading the whole thing. Thanks for posting, @Andy. Of special note to me and many others here:
  14. Sasha

    Presentation Summaries from Solve ME/CFS Discovery Forum October 2017

    It's rare that I learn a new word these days but I just learned 'antepenultimate' from that. :) Edit: Actually, the next sentence is interesting and I hadn't been aware of this: Is that just going to be because antibodies get produced by a stochastic process, @Jonathan Edwards, or is there...
  15. Sasha

    Unrest film - Jen Brea

    Mark Kermode! This is great.
  16. Sasha

    Presentation Summaries from Solve ME/CFS Discovery Forum October 2017

    Short summaries of the presentations, including Zaher Nahle's intro, Hanson, Lipkin, Unutmaz (i.e. the leaders of the centres getting NIH funding) and others - Klimas, Rowe, plus people new to the field...
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