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  1. J

    The COVID Long Haulers: Facing the Cognitive and Physical Consequences, June 22, 2021

    Bump...this is on now.....Koroshetz says long Covid was "unanticipated".....
  2. J

    The COVID Long Haulers: Facing the Cognitive and Physical Consequences, June 22, 2021

    And I got a nice reply...... __________________________________________________ Thanks for this -- appreciate it. Liz Elizabeth Cooney Reporter She/Her Twitter: @cooney_liz Mobile: (617) 752-1491 STAT Reporting from the frontiers of health and medicine Try STAT+ today
  3. J

    The COVID Long Haulers: Facing the Cognitive and Physical Consequences, June 22, 2021

    Here is the moderators email elizabeth.cooney@statnews.com I just wrote her to please ask Koroshetz to provide any evidence that "Long Covid" with the exact symptoms of ME/CFS is a novel disease, and mentioned that NIH has vastly underfunded ME/CFS research, and that NIH might be deflecting...
  4. J

    Intermittent fasting - restricting daily hours of eating - and ME/CFS

    your intermittent fasting—is it several days a week/month eating no food? Or several days eating very low calorie?
  5. J

    A proprietary herbal drug Young Yum Pill ameliorates chronic fatigue syndrome in mice, 2021, Yin et al

    https://hk.asiatatler.com/life/wai-yuen-tong-young-yum-pills-traditional-chinese-medicine https://www.posharpstore.com/en/wai-yuen-tong-young-yum-pill-24-capsules 2nd link lists ingredients. Maybe I need to wait until they release the not-so-young Yum pill version…..
  6. J

    People Want an Alzheimer’s Drug. This Isn’t the One. NY Times

    https://www.nytimes.com/2021/06/07/health/fda-approves-alzheimers-drug.html?action=click&module=Spotlight&pgtype=Homepage Approved.
  7. J

    Canada - Unknown brain disease in New Brunswick

    https://www.nytimes.com/2021/06/04/world/canada/canada-brain-disease-mystery.html?referringSource=articleShare Mysterious Brain Syndrome Stumps Canadian Doctors One of the comments in the comment section references MECFS.
  8. J

    Possible chronic viral infection in ME/CFS (& other illnesses inc Long covid). Discussion.

    The positive response to anti-virals is likely due to a mechanism *not* related to killing/ inhibiting viruses. This was pointed out by Naviaux, but I can no longer find it on his website. EDIT— here it is https://www.omf.ngo/viruses-and-cfs-statement-by-ron-davis-and-bob-naviaux/
  9. J

    Klimas webinar "Understanding ME/CFS Today: A Clinical & Research Approach " May 26

    Here is the recording of the webinar...some yoga mantras on here.... cured my MECFS straight up....
  10. J

    Possible chronic viral infection in ME/CFS (& other illnesses inc Long covid). Discussion.

    https://en.m.wikipedia.org/wiki/Hepatitis_C Another example of a chronic virus that can make people sicker over time. I do think that MECFS patients get worse over time. I also think that the chronic, sub acute virus concept is a dead end and won’t pan out—mostly an opinion, but also because...
  11. J

    Open Medicine Foundation (OMF)

    The Glue Grant: An interview with Dr. Ronald Tompkins
  12. J

    New Study Will Assess Tysabri Effects on MS Cognitive Fatigue

    https://multiplesclerosisnewstoday.com/news-posts/2021/01/21/new-ms-study-by-kessler-foundation-researchers-will-assess-effects-of-tysabri-on-cognitive-fatigue-in-relapsing-remitting-multiple-sclerosis-patients/
  13. J

    Designing a questionnaire on ME/CFS onset

    Should add “medication” or “iatrogenic” to the list e.g. cipro, etc.
  14. J

    People Want an Alzheimer’s Drug. This Isn’t the One. NY Times

    https://www.nytimes.com/2021/05/28/opinion/alzheimer-treatment-FDA-aducanumab.html?action=click&module=Opinion&pgtype=Homepage They’ve spent billions on Alzheimer’s and sounds like they still have nothing. Worth reading even though it’s not about MECFS.
  15. J

    Aripiprazole - Abilify

    What does this mean? Did you personally have a bad experience when you reported something to someone at OMF?
  16. J

    The effects of non-invasive vagus nerve stimulation on immune response and reported fatigue in patients with CFS, FM and RA, 2021, Traianos E et al

    Probably trying to get an indication to be able to prescribe this device (GammaCore) for these diseases. Would have been better if they also used a placebo stimulator that maybe made a noise or something but didn’t deliver a shock. Might be something here.
  17. J

    Klimas webinar "Understanding ME/CFS Today: A Clinical & Research Approach " May 26

    https://nova.zoom.us/webinar/register/WN_gGavNG9SRgSsdh8KGdq_9g Features yoga and acupuncture....no comment.
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