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  1. J

    Colchicine

    Thanks for report.
  2. J

    Jen Brea: My ME is in remission

    What happens after surgery? Does your head pop out more from neck/shoulders? Can you turn your head like a normal person? Like an owl? What are the potential complications?
  3. J

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    Should be OK to look.....Voyeurism is permitted.
  4. J

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    @Jonathan Edwards It looks like Robert Phair agrees with you that there is no compelling evidence for dysfunctional energy production in ME/CFS. Here https://forums.phoenixrising.me/threads/the-ido-metabolic-trap-guy.62727/page-15
  5. J

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Summary Author doesn't believe existing explanations (which are admittedly unusual) for observed symptoms (fatigue, brain fog, etc.). Therefore it is likely "functional disorder", which I think means "it is something, but we don't know what it is". Only interview people who agree with FD...
  6. J

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Merged thread https://www.nytimes.com/interactive/2019/05/15/magazine/diplomat-disorder.html?action=click&module=Editors Picks&pgtype=Homepage An “unknown energy source” has been blamed for debilitating symptoms suffered by Americans posted in Cuba. The real cause may be more surprising...
  7. J

    An old medicine as a new drug to prevent mitochondrial complex I from producing oxygen radicals

    Yeah anethole is different from anethole trithione— the former doesn’t have the three sulfur molecules.
  8. J

    An old medicine as a new drug to prevent mitochondrial complex I from producing oxygen radicals

    An old medicine as a new drug to prevent mitochondrial complex I from producing oxygen radicals https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0216385 In use since 1696! How about that? Maybe test in the nano-needle? (different mechanism than SS-31)
  9. J

    2 metabolic traps/2 types of ME/CFS

    Please allow me to speculate here. Suppose Phair is correct and there are in fact two metabolic traps, #1 IDO (tryptophan) and #2 Tyrosine. Would this perhaps explain the 2 types of ME/CFS I see reported here. First, there is a group of people who have fatigue and brain fog (Brain ME/CFS)...
  10. J

    Nimodipine - use in ME

    @Dechi ( or anyone else) How much Nimodipine do you take per day? Thanks
  11. J

    A complex human gut microbiome cultured in an anaerobic intestine-on-a-chip, 2019, Ingber et al

    No Intel chips here... https://www.google.com/amp/s/spoonuniversity.com/lifestyle/10-best-tortilla-chips-ranked-by-taste/amp Did find a nice intestine recipe tho... https://wannabite.com/edible-intestines-recipe-perfect-halloween-party-recipe/
  12. J

    A complex human gut microbiome cultured in an anaerobic intestine-on-a-chip, 2019, Ingber et al

    Hmmm I prefer guacamole or fresh salsa on my chips...intestines not so much...
  13. J

    IiMER International Conference Week London 2019

    Wonder why Fluge is speaking about the Rituximab trial. This is already published. Better that he presents the (preliminary) cyclophosphamide data.
  14. J

    Building an evidence base for management of severe ME (including sleep management)

    Howard Bloom has a sleep plan and it seems to work for him (he was severe). He sleeps in two four shifts instead of one long one and attributes his improvement to this change. I should probably try this...
  15. J

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    @Jonathan Edwards As mentioned above, these mitochondria data come from a presentation by Prof. Paul Fisher, https://scholars.latrobe.edu.au/display/prfisher, the video of which can be found here https://mecfsconference.org.au/videos/paulfisher/ If I may, I would like to encourage you to...
  16. J

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    Ok I’m confused here. Is the suggestion here that A) Paul Fisher’s data https://www.s4me.info/threads/video-emerge-symposium-2019-dr-paul-fisher-specific-mitochondrial-respiratory-defects-compensatory-changes-in-me-cfs-patient-cells.9177/ are incorrect OR B) These data are correct but that...
  17. J

    Patentscope: Prevention and/or treatment of chronic fatigue syndrome

    https://forums.phoenixrising.me/threads/article-about-new-potential-treatment-by-victoria-bohne-in-norwegian.44871/page-9 Company web site no longer active apparently.
  18. J

    Exosomes

    https://pubs.acs.org/doi/10.1021/acs.nanolett.8b04148 Golden Exosomes......... Golden Exosomes Selectively Target Brain Pathologies in Neurodegenerative and Neurodevelopmental Disorders
  19. J

    Blog: 'Summary so far of "Something in the blood"' by Simon McGrath

    @Simon M Thanks for summary and thanks for pointing out difference between serum and plasma. More here https://microbiologyinfo.com/difference-between-serum-and-plasma/ https://www.westlab.com.au/blog/2018/07/27/what-is-the-difference-between-plasma-and-serum Plasma has fibrinogen, but...
  20. J

    Implant improves fatigue and cognition in traumatic brain injury test case, 2019.

    FYI https://www.nytimes.com/2019/04/13/health/implant-brain-injury.html?action=click&module=Discovery&pgtype=Homepage Wonder what the cost is.... Surgery done at Stanford
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