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There's only one side to blame here. If anything, the patient community has been way too lenient, because we know it would backfire on us. Even when we do everything by the book, as with the IOM and NICE, we are still bullied and attacked for it, the outcome dismissed as the product of...

Since the review has been cited favorably several times recently, is it even worth pointing this out? I'm not even sure who is supposed to care. Doubtful Cochrane does, I don't think anyone would even reply. The journals probably won't, once published it's somehow not their problem. This...

Wow that took a quick downturn. What does it say about medicine that they can go from one myth to another and never see the problem with the underlying thought process of thinking that wild speculation like this is simply not a valid way of understanding things? Also the disconnection from...

Trying to redefine advocacy for discriminated illnesses as some sort of cutesy thing is seriously creepy as hell, extremely infantilizing. For all the lies about having learned lessons from the AIDS crisis, medicine still shows they simply don't respect patients, basically try to describe us...

I mean specifically the process of creating clinical guidelines to be used in healthcare, like the NICE process or IQWIG in Germany. All they evaluate are trials, they don't look at any of this. There is far too much to begin with, and it doesn't really inform anything about how to treat the...

How can they list those studies and claim they are "biomedical" with a straight face? This is clearly false and it takes all of 2 minutes to see it. Oh, right, no accountability and no one involved at this level cares.

I see neither name, although their views are clear here. I knew I remember McKee's name and it's because he was recently an author... on Long Covid guidelines. Ugh. Frankly very doubtful that he is in any way aware that many long haulers meet ME criteria, or that any of this relates to the...

So, not CFS. Gotcha. Throw this garbage in the garbage can. These people's biology is just as bad as their psychology. I still genuinely don't know why sociology is in the mix when clearly no one ever bothers with it outside of a social psychology framing.

There is no evidence-based engineering There is no evidence-based computer science There is no evidence-based plumbing There is no evidence-based accounting There is no evidence-based anything Because in every single profession other than medicine we use nothing that hasn't been proven to work...

That would be even less reliable than the bad questionnaires they've been using for decades. IMO this is an admission that they understand the questionnaires are BS, even though those questionnaires are what defines the very concept to begin with. Because when you have good instruments, you...

I forget which one, but this journalist has written a good article published recently. Seems to know his stuff.

There have literally been hundreds. This is completely unserious. How can this pretend to be a systematic review when it so obviously cherrypicks? The very pretense behind a systematic review is that it reviews everything, systematically. I've never seen less serious professionals than...

The fact that "waves of anxiety" is not laughed out of every room it is said is a sad indictment of how poorly science is doing, how it's scientific thinking that is missing. Science isn't about giving answers, it's a process that allows finding answers. It's not just about outcomes, the entire...

It is. But depression is even less well-defined than ME, or even generic chronic fatigue, and the vast majority of MDs believe it's all depression anyway, so it's consistent to them. It's consistently wrong, but it's consistent. The tells that no one cares are all over the place. In their...

I'd put the general issue of EBM and the BPS model as of equal weight, as evidenced by people with little stakes in the matter like Flottorp and Glasziou (and Garner, to a point, I'd say to him this is all about Cochrane). As they say, it strongly overlaps with the chronic pain guidelines...

I noticed that as well. Given the usual patterns, there's a good chance something like this is happening, and I would bet everything on Cochrane being as awful as they can. Not the first time they've hinted at something weird behind the scenes that ended up happening.

No need for that. GUIDs are just very large numbers or strings that can be assumed to be unique simply because they are so large that the same sequence is unlikely to come up more than once in the entire lifetime of the universe. Very common in information sciences.

Theranos executives tell us their technology is working. Skeptics who haven't seen the technology work are saying it probably isn't. This is why we asked Theranos executives to explain to us what the problem is and how well their marvelous technology works. Basically equivalent. Absurd. Replace...

Wow, what a surprise that this is the same pattern everywhere in BPSland, where they simply attribute themselves credit for natural outcomes along with generic constructs and arbitrary definitions. As if the entire ideology is built on it. So much coincidence.

The possibility that this nightmare could go one past our lives is terrifying. And it's very real, given how little Long Covid has changed. No need to bring PTSD to it, it's like seeing people line up to sharpen their knives knowing what they intend to do with it. It's a threat to our survival...