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  1. rvallee

    Article in Time: Long COVID Isn't the Only Post-Viral Illness

    Cue Mitch Hedberg: they used to do that, they still do, but they used to do that, too. Although by now it would probably be more fair to say we are a punching bag than a punchline.
  2. rvallee

    Lifestyle Redesign® Intervention for Psychological Well-Being and Function in People With Fibromyalgia:A Retrospective Cohort Study 2022 Shomer & Roll

    There is simply no other context where professionals are involved and the denominator used to calculate the effect of something will be anything but the original number, this is cherry-picking. It makes no sense to calculate the effect of something based on such arbitrary criteria. The people...
  3. rvallee

    Long Covid in the media and social media 2022

    Not sure if it will be LC only, but new advocacy account with awareness videos, by a biomedical engineer. Video:
  4. rvallee

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Wow, what a coincidence, that this is what we've been asking for decades. Normal, seeing how obvious it is. But we kept being told it's stupid to think that since it wouldn't accomplish anything. It's a good thing much of this will coincide with AI making it possible to just dump decades of old...
  5. rvallee

    Looking at fibromyalgia differently – An observational study of the meaning and consequences of fibromyalgia as a dimensional disorder 2022 Wolfe et a

    It was always obviously wrong to make syndromes out of single common symptoms of illness, especially based on primary symptoms that often aren't even present in the patient. Somehow making this mistake has lead to making even worse mistakes. It's seriously amazing how people can hold in their...
  6. rvallee

    Long COVID and return to work: a qualitative study 2022 Kohn et al

    Medicine is the critical factor to both. The entire social safety net around illness is built on medicine making decisions about who is ill and who isn't in the same sense as legal issues are decided by judges in courts of law. Medicine is refusing to take this role, so obviously it fails. This...
  7. rvallee

    Long Covid in the media and social media 2022

    I'm not objecting. I just assume this will be bad for us, based on messaging and precedent. Hoping I'm wrong about it, but the pattern so far doesn't support that, unfortunately.
  8. rvallee

    End-Tidal CO2 in Patients with Panic Disorder, Stress-Related or Functional Syndromes, Versus Healthy Controls 2022 Ramakers et al

    Yes. Makes sense. Up is down if you really think about it. (Or if you add a major hand-waving in parentheses, I guess). Or I guess the "dysregulation" must be spiritual, or something like that. (It's going to be functional overlays in parentheses for a while, is it?)
  9. rvallee

    A comparison of health-related factors between patients diagnosed with ME/CFS and patients with a related symptom picture..., 2022, Bernhoff et al.

    When you factor in the criteria, this is anything but broad. It's actually pretty specific, even obvious, to the point where even people who don't understand it can manage it, albeit unwittingly. But what is the point of this study? This has been done dozens of times already. Literally, it's so...
  10. rvallee

    Famous people diagnosed with neurological diseases

    Somehow, almost always: neurology, where immunology occurs.
  11. rvallee

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    This is just as ridiculous as a millionaire priest swinging a jacket around healing people. Absolutely no point in engaging with people like this who have lost all reason. It doesn't even sound legitimate, there is obviously no such thing as "resetting" your autopilot, what a bunch of crap...
  12. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    A recent article (the New Republic) actually made the same claim about PACE. The Wakefield-Horton MMR paper remained published for 12 years. Lots of bad papers remain published. It's even clear that being published is actually a very low bar, even in The Lancet. It's so much easier among...
  13. rvallee

    Covid-19 vaccination experiences

    This really all explains what happened with the flu pandemic, the dynamic that lead to the worst wave. So how bad it gets this time is really all about chance. We will see a massive 3rd winter wave, with most people having lost the immunity that kept severe illness. And how bad it is is...
  14. rvallee

    Post-operative Incomplete Quadriplegia Caused by Conversion Disorder in a Female After Gynecological Surgery: A Case Report 2022 McCrackin & Weiss

    Well that is one creative way to account for issues caused by a major surgery. It's frankly morbid to actually blame incontinence after a total hysterectomy on psychological, uh, well psychological disease is not a thing. And it speaks of quadriplegia but she recovered limb movement quickly...
  15. rvallee

    European ME Coalition:Press release: EU supports research on poorly understood diseases

    Ugh. Still crumbs. Frankly anything that doesn't guarantee long-term stable funding won't work. It's impossible to bring researchers in a field that could dry up at any time, especially a highly controversial one, even though the reasons for the controversy are pure historical baggage. Maybe...
  16. rvallee

    Orthostatic Intolerance after COVID-19 Infection: Is Disturbed Microcirculation of the Vasa Vasorum of Capacitance Vessels... 2022, Wirth and Lohn

    Is it? I thought this was a pretty old hypothesis. Just that, a hypothesis, but I'm pretty sure I've seen it described this way before. It makes a lot of sense, the sum of all capillaries is actually huge, even a small reduction in their ability to do their job will have a huge impact since it's...
  17. rvallee

    Long Covid in the media and social media 2022

    Ironically, the main pressure on the economy here would be in the form of rising wages, which is actually a major concern right now (even though wages are far lower than if they had followed inflation). Fewer workers mean employers have to raise wages and court employees in ways they never had...
  18. rvallee

    Long Covid in the media and social media 2022

    It's sad to say that given what they decide to write about first, I don't trust them. They seem to make it about themselves first. There's this: But, yeah I don't trust them on that point. Either they won't go there, or they didn't manage to learn much and either option is bad. I hope I'm wrong...
  19. rvallee

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    Yglesias is well-known as a troll. No surprise there, this is what's called the "intellectual dark web".
  20. rvallee

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    Shure used the same framing, illness that has "eluded" medicine. While the article cites medical doctors who are making medical claims about this, how they actually understand this medically using their medical experience as medical doctors. They clearly see no conflict here. That this...
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