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  1. rvallee

    Long Covid in the media and social media 2022

    The ironic thing about this is that since most people in the UK have been infected already, this is simply an invalid assertion, as there is no possibility to control anymore. And the actual conclusion from this should actually be that obviously this is a common thing after infectious diseases...
  2. rvallee

    Data-driven identification of post-acute SARS-CoV-2 infection subphenotypes, 2022, Zhang et al

    This looks like classic GIGO. Healthcare records are not reliable for this because they don't record most of the pertinent data. It's basically as reliable as this:
  3. rvallee

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    The biggest takeaway by far is the complete disconnect between the patients and the professionals. It is basically as wide as the gap between a privileged aristocracy and the poorest of their workers whose suffering gives them a life of privilege. Or, quite frankly, as wide as the gap between...
  4. rvallee

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    This tells us one major thing about medicine: that without an accurate theoretical framework, learning from experience simply does not work. It is entirely possible for healthcare services all over the world to see things that are clearly not there, that are so obviously wrong that a child could...
  5. rvallee

    Reliability and validity of the post COVID-19 condition stigma questionnaire: A prospective cohort study 2022 Damant et al

    So, the gaslighting and discrimination will actually be used to excuse even more gaslighting and discrimination, while placing all the blame and responsibility on the discriminated population, even though the stigma is not a property of the patient, but rather of the medical systems that are the...
  6. rvallee

    STIMULATE-ICP-Delphi ... : Study protocol 2022 van der Feltz-Cornelis et al

    I don't think there's going to be anything good out of medicine without heavy patient involvement, which is still so far rejected or abused tokenism. It's clear that medicine is not capable of doing anything here, the failure is too loud. They don't know what they're doing and they can't even...
  7. rvallee

    Reduced Muscle Strength in Patients with Long-COVID-19 Syndrome Is Mediated by Limb Muscle Mass 2022 Ramírez-Vélez et al

    I really don't understand the utility of measuring strength when strength is so massively different between individuals. Even with a prior test it's pretty much meaningless, as being ill for months will obviously reduce muscle strength whether the illness has any direct impact on ability to...
  8. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think that what he's doing is flooding the space with BS making this about fatigue. Once this nonsense is over, once it's finally acknowledged that it's invalid to build a syndrome out of a single symptom that has been arbitrarily decided to be "primary", whether present or not, then a lot...
  9. rvallee

    Predictive model for long COVID in children 3 months after a SARS-CoV-2 PCR test 2022 Nugawela, Crawley et al

    This is obviously not a predictive model as it cannot be used to predict anything. Statistical analysis of associative pooled data is completely useless at predicting individual prognosis. This entire approach is a waste of time whose only effect is creating confidently wrong outcomes. It's...
  10. rvallee

    Altered sensorimotor processing in IBS: Evidence for a transdiagnostic pathomechanism in functional somatic disorders 2022 Schröder et al

    This is what they mean by transdiagnostic: it happens in other diagnoses. You'd think they'd be more precise about that in the abstract. Which the very same people would insist makes this non-specific, or even vague, and thus unimportant. Or, if convenient, "functional"/conversion disorder...
  11. rvallee

    Advice on mask-wearing to protect against Covid-19

    Moved from the PACE thread Loosely related to PACE, but it seems that the use of very poor methodology is definitely a much wider problem than our BPS overlords, it's all over evidence-based medicine. Canadian researchers did a randomized trial of mask-wearing where basically everyone crossed...
  12. rvallee

    The Feasibility and Impact of Practising Online Forest Bathing to Improve Anxiety, Rumination, Social Connection and Long-COVID Symptoms: 2022 McEwan

    With the growth of prescribed nonsense, this is a good new business model, for people who don't mind things like ethics. LP is leading the way on that: don't rely on market forces to feed your business, have the healthcare systems do it instead, they won't have a choice and you get so much...
  13. rvallee

    New York Times article: Will Exercising With a Cold Make You Sicker?

    This continues to understate just how low and varied that limit can be. People hear quickly and pushing hard and they think gym, high-intensity training. They will not make the connection that simply walking to the mailbox sent them into a relapse, or that the light cardio they did was simply...
  14. rvallee

    Long Covid in the media and social media 2022

    Exactly what I am concerned about. Getting attention is not necessarily good if it's from people whose every incentive works to sabotage this. Neurology will have to address the pseudoscience they built at some point, but right now we are basically in the peak era of psychosomatic garbage. And...
  15. rvallee

    A multicenter study of bodily distress syndrome in Chinese outpatient hospital care: prevalence and associations with psychosocial variables 2022 Ma

    Just a fancy way of saying "trust us, we're experts". Which is not valid. People don't trust experts just because they're experts. It's systems of expertise built on science that are worthy of trust. A skilled profession without science is just a guild, or a trade lobby. It's science that...
  16. rvallee

    The Feasibility and Impact of Practising Online Forest Bathing to Improve Anxiety, Rumination, Social Connection and Long-COVID Symptoms: 2022 McEwan

    Decided to check how likely this is to be mostly an infomercial and the list of authors suggests: ayup. 1 College of Health, Psychology and Social Care, University of Derby, Kedleston Road, Derby DE22 1GB, UK 2 Kindred Soil, Bristol BS6 5BP, UK 3 Woodlands Breathing, Edinburgh EH27 8BW, UK 4...
  17. rvallee

    A general thread on the PACE trial!

    From the various discussions and bad excuses, I think that this was all dismissed because the data analysis was "blinded", as if it removes all the other biases that existed at every single step along the way. They don't speak of observer bias because apparently it's good enough that whoever...
  18. rvallee

    Long Covid in the media and social media 2022

    Not sure if good or bad, but many steps are being missed here. There is no going from decades of denial and discrimination, some of it aggressive to the point of being hostile, to a coherent system that helps patients instead. This is a heavily-documented disaster where the entire conflict was...
  19. rvallee

    The Feasibility and Impact of Practising Online Forest Bathing to Improve Anxiety, Rumination, Social Connection and Long-COVID Symptoms: 2022 McEwan

    As best as I can tell, there is no bathing at all. It's "forest bathing" in the same sense as sunbathing. Except it's just videos with an online guide doing a tour. So it's as much sunbathing as watching videos of a sunny beach. It's just insulting that money is wasted on this nonsense when so...
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