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Kind of funny how all the early research on LC was dismissed because it's from online surveys. And then most "official" papers use the same. It's almost as if the issue is not with the use of online surveys, and more to do with being "official". Even if everything else is the same. Almost.

Something I think about often. There will be a need for outreach programs, even if there is a breakthrough, so many will not hear of it and likely have stopped contacting healthcare services entirely. Even then I don't doubt that many physicians will reject it entirely, this will need a systemic...

If objecting to the validity of open trials with arbitrary subjective outcomes lead by biased researchers with massive conflicts of interest, especially a trial that literally applied overlapping entry and recovery criteria, loose selection criteria and dodgy things all around, then count me in...

He did go off calling the Cochrane GET review BS at some point, outrageous. Hard to say what happened and if he carefully read it, but he sure trashed it publicly until he reversed.

The report was published yesterday. Haven't looked yet. Someone noticed, and I can confirm (check the PDF document properties), that this report repurposed a previous report on Lyme disease as template, showing how none of this is new. It's such a well-documented issue that there are so many...

That sure is one valid way to look at this that the proponents of this nonsense won't be doing. It flows from everything they said, that it is on the basis of an effective CBT-based treatment that we can say this something is mainly a biopsychosocial issue, and yet it is the opposite here...

Use for Force jokes aside, this is a great way to deteriorate someone with PEM. And this is simply not a valid way to look at any of this. It means nothing to improve on some arbitrary exercise. I mentioned not long ago that I've taken up regular one-legged balance exercise, as I was becoming...

Aside from the weird "illness and fatigue", which has very strong "drugs and alcohol" vibes, this isn't all bad. Still seems to think exercise where it should be exertion. Given their focus on high performance individuals, it's not encouraging about their awareness of the full picture...

Well, at least it's exposing just how much of a clown show the EBM industry is, nothing but cherry-picking with a few extra steps. Basically 3 logical fallacies and 2 biases in a suit. In a sense this is good, the mask has been taken off and the quackery is becoming loud, there's no longer any...

Institute recommendation could endanger thousands of patients German: https://www.berliner-zeitung.de/gesundheit-oekologie/fehlbehandlung-instituts-empfehlung-koennte-tausende-mecfs-patienten-gefaehrden-li.287807 English translation...

Kindle is more closed-off on purpose. I think there's another one besides that but Kobo usually works well with other libraries, including public ones.

Not sold on using one of those platforms unless they're connected to research. SolveME had an app in beta for years now, still not available outside the US.

But fibromyalgia is usually defined as chronic pain. Not that it should but this is how it's used. This makes no sense. So basically patients with worse chronic pain have worse chronic pain. Still makes no sense, this is completely arbitrary. Why those? Bah, unserious hogwash.

The more I look at the behavior of some people and Garner's, his specialty and work as a Cochrane co-founder, the more I am convinced that what's happening is to prevent evidence-based medicine from falling apart. I can only assume that this is a major reason why things are held up at Cochrane...

People not suffering from chronic pain have less chronic pain than people who do. Public money went to producing this thing of beauty. It already is. The CBT used for pain is "tailored", in the same way as a psychic séance is tailored to the client, but still this has been the pretense for many...

Wow this all sounds really good, I hope they try it one day.

Absolutely insane that modern medicine not only believes in stuff as random and arbitrary as the modern equivalent of the humors, but has so thoroughly lost the ability to judge reality about this issue that they can see nothing wrong with the suggestion that something on the order of a quarter...

Hey there was that other study that touted in their exercise program the fact that it doesn't require expensive equipment as a strength. Even though one of the two arms required access to a pool. It's not like basic facts and coherence matter in EBM. The process is simply to say that it's good...

So much for duty of candor. Enforcement is 99% of any system of rules or laws. A "duty" that is completely unenforced is just a slogan. A system that pretends that what is effectively nothing but a slogan should still be named duty is serious about itself, just not serious about its mission...

They "insisted" uh? Uh huh. Sure. Why not? And other things straight from the corporate brochure by pure random coincidence, I'm sure. "Boss, I swear the kid looked me straight in the eye and said, completely unprompted: 'I'm McLoving it'. They love it. No, they McLove it!" Again, anyone...