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  1. rvallee

    Lightning Process - discussion thread

    The right word is manipulation. Brainwashing is not a real outcome, although it's a real process. Just because people can't be brainwashed to do things doesn't mean they can't be manipulated to say those things. Which is what this is all about.
  2. rvallee

    Lightning Process - discussion thread

    I hadn't noticed the several months after. The usual claims are that a single week-end does it. Garner said a single phone call is all it took. Not that any of this matters. It should, but belief and escalation of commitment are impervious to reason.
  3. rvallee

    Lightning Process - discussion thread

    There is also value in the current attempts to blur everything as "mind-body techniques". LP is for all intents and purposes just as valid as CBT here. They aren't cousins, they are basically conjoined twins. Any criticism about LP applies for everything else in the ideology, the substance is...
  4. rvallee

    ME/CFS services in the United Kingdom

    Those kinds of lies from public officials are scandalous. There is explicitly no evidence that those treatments make any difference in outcome. In the end even many, when pressed, admit that this makes people "feel better", that this is not a cure. Even though they could go right back and say it...
  5. rvallee

    Risk factors for worsening of somatic symptom burden in a prospective cohort during the COVID-19 pandemic, 2022, Engelmann et al

    So once more, they are taking the fact that patients can pretty accurately tell the seriousness of their illness, and that past illness is a good predictor of future illness, as evidence that there is no illness because, I guess, it's not possible for patients to know anything about their own...
  6. rvallee

    Funding award: Novel approaches to the investigation of psychobiological mechanisms in functional neurological disorder, Chalder, Pick and Hotopf

    They're exploiting the same loophole that allowed hundreds of nearly identical studies to be funded, even though normally redundant studies should not be funded unless they add something or do something different. Also helped by the fact that funders clearly don't check for similar studies...
  7. rvallee

    Funding award: Novel approaches to the investigation of psychobiological mechanisms in functional neurological disorder, Chalder, Pick and Hotopf

    Dissociation is clearly, oh so clearly, a neurological process. Common in LC, I've seen so much of it. Rarely talked in other communities but common with brain fog and I think common with us, too. It seems to be an immunological response. If neurology could make serious progress and end most of...
  8. rvallee

    Long Covid - where is the psychosomatics ?

    Maybe a concern, but the smugness of this letter suggests they could not possibly see us as a threat, their opinion of us is far too low for that. This is a conquest paper, they own us and are saying it plainly, will not be letting go. It's normal that more will become involved as the field is...
  9. rvallee

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    As far as I can tell, this site is basically the bible for many physicians and the rest think it's amazing. Outside of our little bubble, I've never seen it described any other than profusely gushing and praising. Fortunately I don't see it discussed too often, but it is always in a beloved...
  10. rvallee

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    Very much. The issue was never whether MS is psychological, the issue always was that before a diagnosis could be confirmed, most pwMS have had their symptoms dismissed as psychological. Until recently, the diagnosis could only be made once the disease had progressed. So in a sense it's true...
  11. rvallee

    Covid-19 vaccination experiences

    Not strictly COVID but I talked with my parents recently about the uptick in respiratory viruses, especially with my mother having lung issues (that predate COVID). The flu is also especially bad but my father said he won't take the vaccine because the last time he had a horrible reaction, was...
  12. rvallee

    Physical activity correlates in people with fibromyalgia: a systematic review 2022 Vancampfort et al

    This is really all why the whole "correlation is not causation" is so important. Especially using such loose criteria that they miss 90%+ of the features. Building an entire discipline out of "akshualy" predictably leads to absurdity and failure. This is seriously beyond absurd and into...
  13. rvallee

    Lightning Process - discussion thread

    Obviously there will be no objections from the crowd who chastises long haulers for seeking expensive untested treatments abroad. In fact I pretty much expect the usual anger at taking hope away from people if anyone doesn't think this is the greatest thing ever, of which they will see no irony...
  14. rvallee

    Life stressors significantly impact long-term outcomes and post-acute symptoms 12-months after COVID-19 hospitalization 2022 Frontera et al

    Clearly, studies don't even have to be predictive, they'll be reported as such anyway. There will need to be laws against this, academia is not able to police themselves here. Purely associative studies can be presented as determinant, even when the associations happen after the illness, with...
  15. rvallee

    Long Covid in the media and social media 2022

    No idea who is behind this but the idea seems coherent: Mod note: We have made a thread to discuss this app here: Monitoring app: Eureka Health
  16. rvallee

    Monitoring app: Eureka Health

    Copied post No idea who is behind this but the idea seems coherent:
  17. rvallee

    Inflammation-type dysbiosis of the oral microbiome associates with the duration of COVID-19 symptoms and long-COVID, 2021, Haran et al

    Given how inaccessible dental health is to many pwME, probably, but no one would ever know. Do they even do basic research in dentistry? Probably but only very specific, or about procedures. My father found a pretty good compromise for that, I'll be seeing a dental hygienist next week who has a...
  18. rvallee

    Using patient feedback to develop an intervention for Long COVID, current study by Trudie Chalder, 2022

    You can definitely say that Chalder and her colleagues mastered the art of producing research, as in the equivalent of movie production in the getting funding and approval and executing the thing. They simply never had to bother beyond that because it turns out that no one cares whether the...
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