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I am particularly interested in this, so anticipated apologies in case this is going off-topic a bit. I wonder whether I understood you properly,@Jonathan Edwards: Do you think that only encephalitis deserves to be called "inflammation in the brain"? Shouldn't we distinguish between any kind...

:eek::jawdrop::wtf:

Just realized that Sir Simon changed his presidency – from being President of the Royal College of Psychiatrists to being President of the Royal Society of Medicine. (Or was he both presidents simultanously?) The latter Royal Society perhaps was so overwhelmed by his new(?) President, that it...

@Jonathan Edwards , apologies, I just realized that in this regard we already have at least one strong, very important and higly appreciated medical professor ally who came from outside the ME field. So we just need some clones of you...Any ideas how to produce them? ;)

Thank you, @Jonathan Edwards. Not very encouraging, but good to know. Is this Iain Chalmers' stance in particular, and how influential is he for Cochrane in general at present? (He appears to have a very one-sided political agenda in other social areas, too, so I thought that could affect his...

Do rehabilitationists in general use their imagination much to think of other forms of rehabilitation than exercise? Yet, are the authors of this review actually rehabilitationists?

Just to broaden the perspective: Not only the Cochrane "Common Mental Disorders Group" but also the Cochrane "Multiple Sclerosis and Rare Diseases of the CNS Group" appears to have questionable standards of assessing research quality: Heine M, van de Port I, Rietberg MB, van Wegen EE, Kwakkel...

I think that's right, because the Council of Europe is not identical with the Council of the EU: wikipedia: "Unlike the EU, the Council of Europe cannot make binding laws, but it does have the power to enforce select international agreements reached by European states on various topics. The...

Germany: Restraining psychiatric patients requires court order https://www.dw.com/en/germany-restraining-psychiatric-patients-requires-court-order/a-44809053

@Woolie, I thought this article might be of interest for your question posted in an related thread re: MS related fatigue: from: Rudroff, Thorsten, Kindred, John H, Ketelhut, Nathaniel B.; Fatigue in Multiple Sclerosis: Misconceptions and Future Research Directions, Frontiers in Neurology 2016...

I just wonder why the questionnaire lists bacteria and fungi infections as "viral".

Unfortunately some of the listed papers do not seem to reflect the premise I found so promising: to differentiate clearly between specific types of fatigue when writing about fatigue. Have to read them yet. The abstract and first paragraphs of one of the now added papers however sound quite...

Thanks to all who have contributed to this thread so far. I hope I will be able to come back to some questions soon. In the meantime, just to get a more complete picture, I added the following paper to the OP: The Fatigue Scale for Motor and Cognitive Functions (FSMC): validation of a new...

@Hole Ousia, speaking of transparency and ethics – sink‘s links to the Science Media Centre also deserve attention IMO. * recommendations for a new function at the Science Media Centre (2010) Bithell https://www.s4me.info/forums/health-news-and-research-unrelated-to-me-cfs.29 * Issues reported...

Good to know!

Thanks, @Woolie . I noticed that the trial protocol (2007/BMC) called PACE a "randomised controlled trial" (RCT), but in the title of the Lancet paper ("The Paper" 2011) PACE was downgraded to a "randomised trial". (Links to the papers...

Today's PACE-Trial-For-Beginners-Quiz So, I skimmed the Cochrane thread, bookmarked some threads in Woolie's wonderful library, digged into this fabulous general thread on the PACE trial, and ended up with two surprise questions for today: 1) What does the acronym "PACE" stand for? 2) Why is...

Nor am I. I forgot about the S4ME-Cochrane thread and just noticed that some of my vaguely posed questions already had been addressed there. Parts of my concerns will move to that thread soon. I highly appreciate your endeavor and find these reactions more than sloppy. What I tried to ask...

Thank you for this great document, @Jonathan Edwards I have written my comment in portions and come late to this discussion, not having read all comments. Thus, anticipated apologies for a likely disjointed and maybe redundant reply. In addition to the points highlighted by earlier comments...

I know this part of ME too well. If there's a place you don't have to feel embarrassed, it's here on the forum though. We even have a thread giving comfort about these special ME moments... https://www.s4me.info/threads/me-moments.985/ :hug: