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Signed. #2389

@Joh and @YaS , thank you!

re Oxford Criteria I recall another discussion: quoted from: https://www.s4me.info/threads/iime-letter-to-mark-baker-nice-re-cbt-get-as-recommended-treatments.1949/page-3#post-34540 #54 & #56

Keeping my fingers crossed for this important debate taking place in the homeland of the PACE trial which has impact on PWME worldwide.

I'm too slow to follow all the posts in this thread, but let me share my vision for an awareness campaign [edit: or at least to start with]: An "Unrest" screening in Berlin, hosted by the Berlin Humboldt University and Free University (Faculty of Medicine) together with the German Association...

Thanks @Joh , you completely got my point.* Hoping I will be able to add some thoughts soon. *Edited: (even though I didn't elobarate.)

Lacking the resources to write more -- just would like to let you know how the German Patient Organisation for MS "AMSEL" handles the issue of false (psycho-) perceptions of illness related fatigue. Apologies for the Google translation (always funny though) - hope the key message is not lost...

:-( How embarrassing (in German: "zum Fremdschämen")! Thanks, Joh, for spreading the information. Unfortunately, terminating membership in Fatigatio is possible not before the end of 2018, but I already sent an E-Mail, and announced the formal letter which is necessary.

@Marco Please accept my apologies for the delayed response. In MS, there are many different types of fatigue, too. Actually, some clinicians distinguish and are really interested in investigating the different forms. At least, they differentiate between "mental", "cognitive" and "motor"...

Done (the poll) . Hopefully not too late (high noon local time).

Thank you for this very important thread. Only was able to read a small part of all the answers. Very good points already have been made to this complex issue of a complex disease. In case these were not mentioned yet, I'd like to contribute two points: 1) Symptoms of PEM may include...

Might be interesting -- whether as an endorsemennt or as a contradiction, I don't know, though: http://journals.sagepub.com/doi/10.1177/1352458517743090