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  1. M

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    It is also fairly easy for children to be quite sedentary- whether it is intended or unintended. So the behaviors of underperforming at school, becoming couch bound, having vague symptoms but feeling ok enough to go to school, all can be camouflaged, to a degree. And then teens, they really like...
  2. M

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    i have met people on mobility scooters, asking me what i got and telling me their doctor never diagnosed them with anything but got sick from viral illness. (Not that i would diagnose them or anything) i think some astute thinking physicians are worried about labelling their patients (adult...
  3. M

    Bias due to a lack of blinding: a discussion

    i agree @Lucibee. One good example of something you can’t really blind would be IV fluids. Some people swear it helps them, while others are simply sipping from their cup. You can’t blind IV therapy, because you know if it’s going in and sometimes you can tell whether it’s fast or slow.
  4. M

    Pressure in legs

    hi @MikeK When you mention blood pooling that you notice mostly when you are horizontal, i wonder if you see your legs or most typically your feet and ankle more swollen? Because for blood pooling, it is for the most part gravity driven. So if you are horizontal then the blood pooling would go...
  5. M

    Central Sensitization Syndrome and Hypothyroidism: An Evaluation of Symptom Severity and Comorbid Diagnoses, 2019, Howard et al

    It seems like they are trying to say that some hypothyroid patients are overcomplaining and may have this imaignary illness that they call Central Sensitization Syndrome. It is unfortunate that patients with multiple co-morbidities are not carefully assessed medically and instead are being...
  6. M

    Coronavirus - worldwide spread and control

    Those cheap paper masks are effective for 5 minutes and not for the finer droplets. If you touch a contaminated surface such as a door knob, and then you fix your mask because your nose is itchy, you have just contaminated the mask. In this instance of a highly virulent disease, the N-95...
  7. M

    Coronavirus - worldwide spread and control

    Sure, that would help, however it will not change the fact that the virus has already been transported and shared to surrounding countries and overseas.
  8. M

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    There was a SARS outbreak in Toronto. I have also read that some went on to develop ME. i forgot where i read that from.
  9. M

    Coronavirus - worldwide spread and control

    British Columbia announced today they are taking the outbreak seriously by advising hospital staff, emergency services and airports. They said they now have a test for this virus: Just like like that. Not one person affected in the province or even in the country. But they have a diagnostic...
  10. M

    Traumatic brain injury impairs hormone production, disrupting sleep, cognition, and memory

    This is an article of a paper that is yet to be published. View here. There is much more to the article, discusses a trial with growth hormone. BIAFAC stands for brain injury associated fatigue and altered cognition. It makes me wonder, how many of us had a genuine concussion prior to...
  11. M

    Differentiating post-polio syndrome from myalgic encephalomyelitis and chronic fatigue syndrome, 2019, Jason et al

    This is the work of Dr Leonard Jason, a well respected psychologist who happens to do epidemiology as well and who is a patient himself. The type of research he does is not typically blood based, though sometimes he collaborates with scientists on the biological side. His work is very much based...
  12. M

    Vegetables fail to slow Prostate Cancer (2019 study - Parsons et al)

    Cancer doesn’t care whether you eat fruits, veggies, meat, fat, french fries, Paleo, raw, vegan, nothing at all (fasting), donuts, and everything in between. Cancer cells have been programmed to take nutrition from healthy cells.
  13. M

    From the 25% ME Group website - Diagnostic Tests 4 Myalgic Encephalomyelitis

    I don’t think it’s this simple. They are heavily referring to a few physicians who perform their preferred tests (in the case of SPECT scans, only 1 radiologist can read, in Chile)- They are referring to scientific publications- some of which have not been replicated, or only have a few...
  14. M

    Comprehensive Circulatory Metabolomics in ME/CFS Reveals Disrupted Metabolism of Acyl Lipids and Steroids: Levine,Hanson et al 2020

    Thank you NIH and NINDS but special thank you to the generous private donor.
  15. M

    Final US Federal Budget Report: Victory! 6 Major Federal Wins for ME/CFS

    Thank you so much for your hard work @Emily Taylor and team! you have been consistent in advocacy and in offering opportunities for researchers to advance research and funding for all of us. I look forward to participate in the patient registry.
  16. M

    Possible cancer risk from ranitidine

    Let your dr know. It didn’t work well for me either. Rabeprazole worked for a long time and now i am on esomeprazole.
  17. M

    Unexplained exertional intolerance associated with impaired systemic oxygen extraction - 2019, by Melamed, Systrom et al

    The thing is that you can tell if someone give their best effort or if they don’t. And the Workwell CPET (Betsy Keller too) asks for the perceived exertion through a visual annalog scale, which is administered every 1-2 minutes or so. Then you have the Respiration Exchange Ratio (RER) which can...
  18. M

    An Adrenalectomy Mouse Model Reflecting Clinical Features for Chronic Fatigue Syndrome, 2020, Lee et al

    Several years ago I felt so horrible and I begged my dr to ‘do something’. She is a bunch of blood tests, one of which was the AM and PM cortisol. It came back flagged at a critical low. Something like 45 when the normal range would be 180-800. I was sent to the endocrinologist, which was...
  19. M

    Unexplained exertional intolerance associated with impaired systemic oxygen extraction - 2019, by Melamed, Systrom et al

    Patients on beta blockers will not be able to raise their HR higher than that. Ask me how i know ;)
  20. M

    Low-dose naltrexone as a treatment for chronic fatigue syndrome, 2020, Bolton, Chapman, Van Marwijk

    Why a drug trial matters: 1) for the drug to be designated as a treatment for a particular disease. 2) to establish safety and effectiveness for a particular patient population, and to establish most recommended dosage 3) so physicians know it is safe to prescribe to their patients (here in...
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