Search results

I don’t think anyone here would not volunteer...

No, they mentioned Losartan. Angiotensin 1receptor blockers.

Here is an interesting bit: (Bolding mine)

Auto-immunity is still a scientific mystery, but psychiatrists and psychologizers would say ‘child abuse’. In this case with this paper, we have a potential to better treatments for POTS, however this is a small sample size. I wonder if a commercial test will follow.

As an aside note, I wasn’t sure where to put this paper. While this is not ME research, POTS is a very significant comorbidity which in my opinion deserves being posted alongside with ME related research. This is an important paper.

Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome Authors:Xichun Yu, Hongliang Li, Taylor A. Murphy, Zachary Nuss, Jonathan Liles, Campbell Liles, Christopher E. Aston, Satish R. Raj, Artur Fedorowski, David C. Kem (from Oklahoma, Sweden and Calgary) Abstract...

I believe there as a meeting about the Canadian Consensus criteria. But i was not sick back then. It might have been 2003.

So why exactly did she present on this, as a clinician seeing patients and as a patient herself? Like how many useless things have patients tried over the years, how much of it worked and significantly improved their health, how much of it is placebo response, amd how much of it sets the...

My opinion is... medicine is everything but what is currently offered for patients with ME in Canada. We deserve so much more than being told to learn a new music instrument, or to meditate or to eat broccoli. Insert expletive comment here.

Must agree @Snowdrop and it has underlying flavors of childhood adversity. Then suggestions that empowerment will lead to better functioning. This is so very wrong. The rest of her presentation does not make sense.

And she thought that this slide was a good idea in a ME scientific meeting because...

I feel compelled to say thank you. What matters to me is not whether there is an environmental component for some of our patient population especially when it comes to MCS. What matters most to me is to stop the stigma, stop the labelling, and for all patients with ME and FM to get mainstream...

Does that make ME and environmental illness and does it warrant ME to be labeled as such? This label at least in Canada, allows the Ontario government from segregating patients into a tiny program called environmental illness, and yet this program does not accept patient with diseases which are...

Then there is the case for childhood abuse and they are actually researching still today how many of the patient attending the Vancouver clinic have had ‘childhood adverse events’. There is actually no medical care. All coping, holistic, psycho-social. Centrally-sensitized patients require no...

Change is hard, as if changing our lifestyle would cure us. So very wrong my blood is boiling too.

The problem @JaimeS is that they take a lot of room in Canadian clinics which impedes progress. i hope these people stayed for the scientific meeting and that their practice will change for the better. The clinicians must stop their harmful narrative to patients, and must be agents of change in...

i know you guys have had a conference recently, (last 2-3 years perhaps)- the conference in Canada was successful from my point of view. I agree that the strategies have to be carefully thought through, but the more we try, eventually we will win and prevail. Here are a few ideas: -May 12th...

This: And this:

I hope so too. However this involves an invasive procedure, the blurrying of the fibromyalgia case definition and the lack of medical home are all barriers to a replication study.

Abstract Fibromyalgia (FM) is a syndrome characterized by widespread muscular pain, fatigue and functional symptoms, which is known to be difficult to diagnose as the various symptoms overlap with many other conditions. Currently, there are no biomarkers for FM, and the diagnosis is made...