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  1. M

    New Screening Tool May Predict Chronic Pain Before It Starts, 2020, Brown and Lee

    I am a bit skeptical about this. https://publichealth.berkeley.edu/news-media/research-highlights/new-screening-tool-may-predict-chronic-pain-before-it-starts/
  2. M

    Plasma proteomic profiling suggests an association between antigen driven clonal B cell expansion and ME/CFS, 2020, Lipkin et al

    I have to be honest, the technicality of this paper is way beyond me, but i have a few questions: 1) does their work warrant further study in this specific topic, what would it be and where would that lead? 2) if the clonal expansion leads to suggestion of autoimmunity, would this be grounds to...
  3. M

    What’s in the pipeline? Ongoing, registered, or planned clinical trials for ME/CFS

    I think that things are happening behind the scenes, but good research takes time and researchers cannot talk about it until it is published.
  4. M

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    Some of the physicians who are part of this group believe it, and teach that to their patients as part of the CBT curriculum.
  5. M

    What’s in the pipeline? Ongoing, registered, or planned clinical trials for ME/CFS

    Clinicaltrial.gov notice about this trial states this: Dr Younger has been quiet as of late. Hopefully it means he is near publishing. The recent IACFSME conference had a presenter that made mention that LDN had not so much effect on fatigue, but was helpful for pain. She represented the...
  6. M

    What’s in the pipeline? Ongoing, registered, or planned clinical trials for ME/CFS

    Is there any reasons given as of why LDN trial is suspended?
  7. M

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    At least one doctor in this group will say meditation and mindfulness
  8. M

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    Some in the list just don’t prescribe drugs.
  9. M

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    This one dr i know is all about management plan and CBT aimed at pacing activities, and if the patient crashes, then it’s because the patient deviated from that plan, they didn’t pace properly
  10. M

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    This refers to central sensitization. from first view, it seems to be a mishmash of each one of the physicians in this group. I can recognize who got the MCAS part and who owns the meditation part.
  11. M

    BMJ letter from LongCovid doctors.

    Right. Could have fooled all of us with his knighthood and his ‘successful practice’ of fooling unsuspecting and vulnerable patients
  12. M

    BMJ letter from LongCovid doctors.

    So... doctors who seemingly will are also patients might have a taste of what ‘post-viral medicine’ has to offer: mindfulness, meditation, CBT and ‘It might take a few months to recover’. They may be offered a spot in the specialist ME clinics if in the uk, where they might get briefed on how...
  13. M

    Elevation in histamine and tryptase following exercise in patients with mastocytosis

    Hi Scott, could you please link to the webpage and not the pdf, so we can see date of publication, and the rest of the information ? It also seems that the article is incomplete.
  14. M

    Pain in adolescent chronic fatigue following Epstein-Barr virus infection, 2020, Wyller et al

    Without reading the paper, here is my comment: Take home lessons: pain very bad, very bad pain, we must do something about that. Seemingly EBV infections means pain??? Should they investigate other onsets too? Pain investigation means psych consult. Pain intervention means rehab and CBT
  15. M

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I agree with you @cassava7, and it is actually important to map out the specific impacts and co-morbidities associated with COVID such as clotting disorders, cardiac and pulmonary pathologIes and strokes. These seem to have been reported throughout the spring and summer, and only through long...
  16. M

    A request to those involved in ME research to indicate their position on spinal surgery

    Is his response confidential or has it been shared somewhere else?
  17. M

    A request to those involved in ME research to indicate their position on spinal surgery

    Ironic maybe but there is, Science Media Centre.
  18. M

    August 21, 2020 IACFS/ME Virtual Conference

    I attended. I missed the first block due to sleeping in (it was after all only 7 AM on the west coast). There were no major revelations, and because i missed the beginning i am not sure what is embargoed- Due to brain fog i will need to watch again to make sure i didn’t misunderstand any...
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