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Open access: https://jnnp.bmj.com/content/86/10/1113 Glenn Nielsen, Jon Stone, Audrey Matthews, Melanie Brown, Chris Sparkes, Ross Farmer, Lindsay Masterton, Linsey Duncan, Alisa Winters, Laura Daniell, Carrie Lumsden, Alan Carson, Anthony S David, Mark Edwards Abstract Background Patients...

What a lot of nonsense. I note that this is copyrighted to the Royal College of Physicians, 2021. Andrew Whitfield is the author, and clearly he was drinking too much Kool aid as he wrote this guide for junior doctors. He seems convinced that these conditions (weakness in specific parts of...

'Oversight' is quite a troublesome word in English, with two quite different meanings. In this article, they obviously meant that patients can become active agents in the management of their condition, but the other meaning is more accurate. By promoting the idea that patients can just manage...

Yes, hopefully someone who has looked at this in detail will comment. But, my understanding is that 'indirectness' in relation to the PACE trial relates to the percentage of people who did not have ME/CFS (i.e. did not have the core symptom of PEM). e.g. this comment about a study: "Serious...

I did too.

Some posts have been moved to UK: Priority Setting Partnership for ME/CFS

Your letter makes a good point about the relationship between NICE and Cochrane, while Cochrane has such low standards for its research evaluation. I haven't got around to looking properly at GRADE but I understand from others that the fundamental flaw of unblinded+subjective outcomes may not...

:) But are you a 'treatment option' @rvallee ?

A number of posts have been moved to: Why do BPS proponents keep ignoring the evidence against their ideas?

It's nice to see Dr Bateman dialling back the expectations about CT-38 and making it clear that she and her clinic are not promoting the drug. It's still a bit surprising though that she is as positive about the prospects for the drug as she is. I'm not sure what she is seeing.

An article about Long Covid in South Africa (first posted about here) Covid-19: Clearer picture of long Covid slowly emerging There's some good commentary from Professor Jonny Peter, Head of the Division of Allergology and Clinical Immunology at the University of Cape Town and Groote Schuur...

(Veering off-topic, but yes, I've had exactly the same thought lately. I spent a year at Oxford, and, coming from New Zealand, I was utterly amazed at the colonial and class attitudes that were deeply embedded there. It's no coincidence that a number of the BPS proponents are based at Oxford...

Great to see a negative result from a good sized study being published. (edit: I mean, ... and the negative result being clearly presented in the abstract, rather than spun as a positive result.)

I suspect the use of 'asthenic disorders' in this paper is mainly a result of the translation of the original from Russian.

That new link takes you to: The SARS-CoV-2 receptor angiotensin-converting enzyme 2 (ACE2) in myalgic encephalomyelitis/chronic fatigue syndrome: A meta-analysis of public DNA methylation and gene expression data Abstract People with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)...

Interesting definitions, especially Trish's one. Before seeing those, I had wondered if asthenia might be a useful term for describing a symptom of ME/CFS, as the definitions I had seen focused on the easy fatiguability, and the larger than normal effort required to move. Of course it's part...

A post about someone recovering after 14 months with Myhill's protocol has been moved here: Dr Sarah Myhill

The producer of Cortexin is Geropharm

Cortexin? from Neuroprotective action of Cortexin, Cerebrolysin and Actovegin in acute or chronic brain ischemia in rats It seems to have neuroprotective action with an ability to cross the blood brain barrier.

It's becoming better known that the vaccination can cause myocarditis. Typically, if it does occur it's mild, resolves on its own and only lasts a couple of weeks, but it can be a lot more serious. When I had my second vaccination a few days ago, the nurses were warning people that if they...