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It's going to get worse as there are 'branches' of the SMC in other countries and presumably they pass on their releases. eta: I see the ME Association are also retweeting all the various articles (although have not spotted the ones with the Sun headline yet) Michael Sharpe adding his words...

I was thinking the same and trying to find out who it would be addressed to and came across this: https://www.s4me.info/posts/130195/

I have been reading the testimony by Fiona Fox to the Leveson official inquiry into the culture, practices and ethics of the press from 2012. Interesting and in places funny. In light of recent and past SMC press promotions it is worth a read. eg: A couple of initiatives to improve accuracy...

he would pick possibly the worst paper to retweet:banghead: eta: also Pariante may be an expert in something but NOT in ME/CFS

Pretty sickening all the articles on this research all over the web with 'ME patients are not just Lazy' as heading .

https://questioning-answers.blogspot.com/2018/12/the-depaul-symptom-questionnaire-for-CFS-ME.html by Paul Whitely eta:

full article here: https://www.cjr.org/analysis/lyme-disease-contested-illness-empathy.php

Shouldn't this be included in any new Cochrane review on exercise and ME/CFS?

This may be of interest: "New RNA sequencing strategy provides insight into microbiomes December 17, 2018 Researchers from the University of Chicago have developed a high-throughput RNA sequencing strategy to study the activity of the gut microbiome. The new tools analyze transfer RNA (tRNA)...

Chronic Fatigue SyndromeStatements By Members December 13th, 2018 / 2:05 p.m. Liberal Anita Vandenbeld Ottawa West—Nepean, ON M. Speaker, I rise today to shed light on a medical condition that affects over 800,000 Canadians. Myalgic encephalomyelitis, commonly referred to as “chronic...

If that is the case then it proves nothing and it is not the message that is being disseminated. eta: Interesting that it is in Chapter 16. Psychopathology: Biological Basis of Behavior Disorders https://www.biopsychology.com/news/index.php?descType=always&id=16&type=bpchapter&page=0

Dec. 17, 2018 (GLOBE NEWSWIRE) -- Hemispherx Biopharma, Inc. (NYSE American: HEB), an immuno-pharma R&D and emerging commercial growth company focused on unmet medical needs in immunology, recently met with clinical patients at Hunter-Hopkins Center in Charlotte, N.C. undergoing treatment for...

I thought the Oxford criteria required 6 months of unexplained fatigue? If interferon therapy is already known to cause lasting fatigue how is that unexplained? "IFN-alpha, which is used in the treatment of chronic Hepatitis C Virus (HCV) infection, induces a persistent fatigue in some...

well done; just listened.:thumbsup: eta: just goes to show that it is possible to get the right info out there, and ask the right questions.

I don't remember any of the other MPs defending the treatment (not even the Minister who spoke at the end). There was a lot of anti-PACE discussion. Where did the BBC get this from? eta: need to check the Hansard, but I think a complaint/retraction of that line request might be in order...

replying to who would be the 4 inspirational people you would give a copy of your book to

Author Interview - Jessica Taylor-Bearman Dec 7, 12:57 PM Interview on RNIB radio

Severe posterior hypometabolism but normal perfusion in a patient with chronic fatigue syndrome/myalgic encephalomyelitis revealed by PET/MRI. Sahbai S1, Kauv P2, Abrivard M3, Blanc-Durand P4, Aoun-Sebati M3, Emsen B4, Luciani A5, Hodel J2,5, Authier FJ3, Itti E4. Author information 2018 Dec...

'The MS hug' : symptom I was not aware of and thought might be of interest https://www.mstrust.org.uk/a-z/ms-hug#what-is-the-ms-hug

Although there has been media coverage of 'the flaws in the PACE trial' it has been nothing compared to the headlines of '60% of pwME recover with CBT/GET' style reporting (even though the 60% was 'improvement') The move from 60% to 21% should surely have been a big enough revelation, even...