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Didn't know where to post this or if it has been posted before; https://www.qmul.ac.uk/wolfson/media/wolfson/ref-2014-results/UoA2-chronic_fatigue_syndrome.pdf We have so much to thank QMUL for

https://www.s4me.info/threads/bacme-website-changed-members-area.7068/

https://www.s4me.info/threads/iame-international-alliance-for-me-anyone-know-about-them.4108/

:laugh: says it all really!

"IF"; my mother often used a saying "avec des 'si' on mettrait Paris dans une bouteille" Yes, I see your point but my point is they are saying it to the wrong people. (anyone tweeted this 'declaration' to Michael Sharpe or Simon Wessely?)

key speakers at the BACME conference were Esther Crawley (former Chair) and Per Fink (not a member). Their CFS/ME Therapy download (from 2014) says: " Guidance for therapists covering the provision of therapy for CFS/ME. This includes a list of resources (available on the website BACME.info)...

BACME have a new "Find a specialist CFS/ME service" on their website https://www.bacme.info/#help (does anyone know how to find out about the current Governance of BACME; Gabrielle Murphy is apparently no longer Chair, so who is?)

"While not formally classified as such, ME and CFS have often been grouped with Medically Unexplained Symptoms, Functional Somatic Syndrome, Somatic Symptom Disorder, Bodily Distress Syndrome, and similar terms (Improving Access to Psychological Therapies, 2014; Fink, 2017). This continues to...

EFNA Advocacy Awards 2018 winners announced here: https://www.efna.net/efna-advocacy-awards-2018/ no ME presence(?)

Just came across another journalist who has ME: https://www.theguardian.com/profile/scott-jordan-harris he's on twitter http://twitter.com/#!/ScottFilmCritic he wrote this piece in the guardian in 2012...

might it be the guy at the other place? (journalist, in London who had just been diagnosed c 2016, said he might write about ME) can't remember his name over there.

:jawdrop: what were they doing?

1st December New Psychological Medicine Centre at John Radcliffe Hospital Prof Michael Sharpe and Dame Fiona Caldicott full article here: https://www.oxfordtimes.co.uk/news/17269520.trust-opens-new-psychological-medicine-centre-at-john-radcliffe-hospital/?ref=twtrec

retweeted by Michael Sharpe: eta:on that thread:

Another good article by Sasha Nimmo: OZ Guidelines – Disability can be defeated through treatment full article here: https://meaustralia.net/2018/11/30/difference-between-australian-chronic-fatigue-syndrome-guidelines-and-me/

" Professor Sonya Marshall-Gradisnik Menzies Health Institute/National Centre for Neuroimmunology and Emerging Diseases “I was the first to demonstrate numerous immunological and genetic abnormalities in Myalgic Encephalomyelitis.” https://www.griffith.edu.au/equity/gender-equality/women-in-stemm

Most Downloaded Medical Hypotheses Articles The most downloaded articles from Medical Hypotheses in the last 90 days. Treating patients suffering from myalgic encephalopathy/chronic fatigue syndrome (ME/CFS) with sodium dichloroacetate: An open-label, proof-of-principle pilot trial May 2018...

Thanks for the reply. Look forward to reading your blog post on this issue. eta: are there any organisations that we could potentially approach? I have noticed that in the media that HIV (re stigma) has just started getting more coverage.

Chalder has contributed a chapter on MUS in the latest edition of this book (Nov 2018) The Therapeutic Relationship in Cognitive Behavioural Therapy 8. Medically Unexplained Symptoms David McCormack & Trudie Chadler They try explain why they now apparently prefer PPS to MUS...