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Initially I thought the same except based my thinking on a positive outcome (ie having 'passed' the test on one you don't need to worry about the other). But the petition points out So they would have to somehow change the assessment to cover both issues, quite how I don't know but both...

I did a transcript a while ago here: https://www.s4me.info/threads/13-march-2019-chalder-%E2%80%98medically-unexplained-symptoms%E2%80%99-my-clinical-and-research-journey-over-30-years.5576/page-3#post-152193

I imagine if the NHS invested in more properly trained dieticians/nutritionists who were well informed about a variety of illnesses it would be a lot more helpful and produce longer term benefits than CBT therapists. This could be for people with diabetes to celiacs or those with lactose...

Don't know if this has been posted. Article in Vaaju (Sweden) in english The risk of embracing ME Seems to be a re-run of something from 2018(?) https://vaaju.com/swedeneng/the-risk-of-embracing-me-leader/

Finally got a response to this; this is the change they have made: bit late and too subtle if you ask me.........

UK Gov petition (ie at 10,000 Govt will respond) currently 3567 signatures (my addition: if you fail on the one test but were previously in receipt of both benefits, you would effectively be left with nothing, pending appeal.) link here: https://petition.parliament.uk/petitions/244329

I haven't read all the articles but in the Mail one it says: so if there were any improvements how do they know it is not due to a change in diet? eta: from the eurekalert article more empire building

:laugh: how very '70s

I've read some of the comments of people who signed. I really doubt they have read all the stuff the petitioner has posted and are largely signing because they don't like the fact that ME gets 'clubbed in' with 'chronic fatigue'; unfortunately that is not what the petition is about (as far as I...

just randomly looking at stuff on 'exosomes' and came across this reference (2018) https://www.sciencedaily.com/releases/2018/06/180613113753.htm

watched this earlier today. One question to others re something raised towards the end of the video; from memory so excuse if not entirely accurate, but Ben said that pwME don't sweat as much as healthy people. Is this other peoples experience? I sweat a lot, particularly at night and find...

https://journals.plos.org/ploscompbiol/article?id=10.1371/journal.pcbi.1006967 (I haven't a clue what any of this means but figured someone might find it of interest)

Psychology Tools Limited 32 Queens Road Reading RG1 7AU United Kingdom Downloads include: Behavioral Experiment Worksheet "Behavioral experiments allow individuals to test the validity of their beliefs and assumptions. They are a core experiential technique for therapeutic change in...

Action for M.E.'s response to the Ofsted Consulation April 08, 2019 full statement here: https://www.actionforme.org.uk/news/our-response-to-the-ofsted-consulation/

the transcript (ie captions file) is here: https://videocast.nih.gov/vodCaptions/niaid040419.txt

typical of any state organisation tho; you want something, they take as long as they want, they want something, it has to be all tickety-boo and done yesterday. The CBT/GET survey also had a very short time to be completed.......... one might think they were setting things up to fail(?)

unless they know of researchers who just happen to have one they 'prepared earlier'..(?):cautious:

excellent job @Michiel Tack :thumbup: