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I am not quite sure what the paper really says, if it is indeed consistent. I am not sure anywhere it says what you are suggesting the data showed. but Nath has specifically said that patients 'can' do things but don't.

I don't know whether it did or didn't but my point was that I don't think PEG was even mentioned. And I think it very likely that this argument is only made when it is thought that if the patient is not 'over-medicalised' by offering artificial feeding they will eventually get around to eating...

When I try to stand up from near the floor my brain tells itself that my muscle cannot contract. It just won't. But I know that if you put an electric current through it it contracts fine - I have had it done as part of electrophysiological tests. And of course the muscle works fine in other...

But wasn't that all said in the context of it being established that she had mental capacity? And my memory is that PEG was not mentioned, only TPN. For people without mental capacity you do whatever it takes to try to keep them alive. My understanding is that the objections to TPN assumed...

Where did it say that? It is important if true.

My understanding was that now that Saul Berkowitz has left the service it is just a mixture of psychiatric and unashamed alternative medical quackery. UCLH has a neurogastroenterology set up for feeding support but I think it highly unlikely that there is any link to the RNH for Integrative...

Nath and Walitt claim that if it is shown that your muscles work OK and you claim not to be able to use them this must be due to a faulty 'effort preference'. At least I think they say that, they seem to say different things at different times. We know that is nonsense because there are lots of...

I don't follow. We know that mental capacity was mentioned. That can only have been relevant if it would have affected policy. I didn't see any reference to what would have been done if the answer on capacity had been different.

The account of Dr Strain's presentation does not really say anything but hopefully I can see the video. The session on severe ME/CFS from UCLH does not say anything much beyond the obvious lack of provision. The tricky issues do not seem to have been tackled. Edit: I don't seem to be able to...

The sleep session sounds like garbage.

Vikki McKeever raises the point of inadequate medical input to services which seems good. I agree that the use of a dysregulation model as a 'basis for therapy' is worrying. The only basis for therapies when we actually have some will be reliable evidence, not any form of theory.

Fair enough, but I would seek endorsement once the materials were ready. I wouldn't want to get into negotiating content or structure in order to get endorsement.

Stewart appears to be a private physician (for the last 45 years) with quirky ideas on nutrition. How someone like that can be suitable as an opening medical speaker beats me. There is a generally Stone Age feel about the whole thing.

I am not sure what a charity would have to offer though. There is no cost involved, just hard work. And there needs to be no political agenda.

Voluntary action.

I wonder what he prefers? Medicine no longer follows 'common sense'. It follows reliable evidence. What success of the service? etc. I don't know the answer to Trish's question. Except of course produce our own S4ME educational literature. That could be done but it needs a lot of energy. I...

You may be right but I think their hypothesis needs to be thought through carefully and as the paper is written there seem to be quite a lot of assumptions about what one would expect that I am not sure are necessarily as self evident as they might suggest.

I absolutely agree. I have tried to generalise as far as I can but it is difficult to avoid at least indirect reference to the one example we have some information about and it is crucially important for me to get the ideas about this right if I am to try to argue the case with professional...

I don't think we know that at all. The doctors appear to have decided that if sectioning was not applicable then they had no responsibility to do more than try an NG tube once or twice. If a patient is deemed sectionable that means that they are deemed not to be able to make decisions about...

We disagree, Valerie, I guess. The legal aid issue I see as largely a red herring. The injustice in the inquest goes much deeper than that, as in the Post Office case. I am very happy to admit that the medical profession is just as bad in certain respects but perhaps not at this level of...