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Exactly. If you end up deconditioned because you someone tied you to a bed, no amount of CBT/GET is going to untie the straps for you.

To me this comes back to what I said a short while back: Psychiatric 'science' is probably, quite literally, hundreds of years behind other medical sciences. I would think this is for a simple and honest reason - human mentality is an extremely challenging area to research and study. So far as...

Just because some people will have certain health issues arise if denied the chance to work, does not in anyway translate to people getting healthier if other health issues are preventing them from working in the first place.

I I suspect the reason is much simpler: the DWP doesn't have to pay so much to people who are employed - full stop. The illness/work/benefit thing is just a decoy, to avoid the illness benefits issue.

Exactly. Even if a drug had been released for general use, if harms were subsequently reported of non-trivial risks to patients, especially where trialled benefits were at best mediocre, then surely that situation would be challenged. What is it with this arrogance of PACE/BPS.

T'was me who started it :). But no, it's really great to have all this help. Will work on it by looking at just one aspect at a time, to avoid complicating things.

Many thanks. Yes, must try and tune into these issues.

It feels to me like the psychiatric 'sciences' are hundreds of years behind biomedical science, not just in terms of clinical understanding, but also in terms of approach to science. I can appreciate that the brain/mind is fearsomely complex, and that research will inevitably have a much steeper...

1. PACE clearly did have an effect, insomuch as it prevented changes that should have happened. Saying nothing changed due to PACE doesn't meant it should not have. 2. "We will now analyse the results of this important trial in more detail ...". But as I understand it, NICE typically only...

I think that is the point. PACE supposedly confirmed to public and medical professional opinion that PwME had a good chance of improvement, and recovery even. It apparently ratified previously suspected beliefs about PwME; and the national press picked up on it eagerly.

That's really interesting. Once we can look at my wife's results will first look to see if these have been measured.

I'm confused why you are apologising Inara? Don't see what you need to be sorry for, which worries me I may have said something to upset you without realising it. Really appreciate your advice, and will follow it up soon as able. Genuine thanks :).

Inara, we are currently in process of accessing test results, so will see what gives. But my wife walked significantly further the other night than she has done in many years, albeit still slowly and far from fully able. Both very pleased. Thanks for your input.

The blind leading the blind, but convinced they have 20:20 vision.

"Psychiatry – the medical speciality that combines empathy and science" ... producing a result that has neither.

No, but having been on 75µg T4 for many years, and trying 100 for a while, the difference is very noticeable. Doesn't T4 just convert to T3 anyway?

This post and subsequent discussion have been moved from another thread here at @Barry's request. I find this interesting, because my wife developed ME after a thyroid operation, and contracting a bad flu bug during her convalescence. I now understand - having been doing a bit of reading up -...

Seems to have been an unhealthily cosy relationship between @Action for M.E., Bristol ME clinic (EC?) and the DWP here, especially when you read "Support, Empower and Employ people with M.E.", which to my mind sounds like double-speak meaning get them off benefits whether it's humane or not...

They must be circulars ;)

Especially as the error margin between being harmed, or not, could be extremely narrow, and may well have delays between causes and consequential harms. Might be clairvoyance rather than medical skill that is needed.