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    Rod Liddle in the Times: "Always fatigued — yet they never tire of claiming their malady really is a virus"

    Moderator note: Most of the Liddle piece had to be edited out as the forum cannot breach the copyright. [Edit: Apologies to moderators. If anyone wants a copy of the full article send me a pm] Liddle is so widely despised I wonder if having his guns pointed at us may actually be a positive...
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    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Mike Godwin re-joins the conversation: Meanwhile, Dr Kate Stein appears to have deleted her tweets supporting Sharpe. I infer this because the Tweets now appear as “unavailable” on my Twitter feed but when I click on her Twitter handle I do not appear to be blocked:
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    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    This is great news! I knew you were thinking about it but I didn’t know it was fixed. This is exactly the right approach. Can Grand Rounds be live streamed or recorded?
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    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    On occasions I have sent private messages to people, politely asking them to delete inappropriate messages, and explaining how they can be counterproductive. (If they don’t follow me, I ask them follow me so I can send them a pm.) On the few occasions I’ve done this I’ve found it to be...
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    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I guess it could. But I welcomed the House of Commons debate and I was disappointed that it didn’t get more coverage in the media. Sadly, ME research has become a political issue, and I therefore think it is right that MPs should represent the concerns of their constituents who have been so...
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    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    @Trish Excellent comment. Thanks. For anyone considering submitting their comments as a letter to the Editor (for publication) the address is letters@thetimes.co.uk You must include your full name, address and tel number. Also best to keep it less than 250 words. Of course, if you happen to...
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    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I think this reflects exceedingly well on the ME community. This article appears to have been researched for months and Sharpe appears to have has spent most of that time trying to induce abusive Tweets. If these are the best/worst examples they have been able to come up with, the ME community...
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    SMILE trial data to be released

    At a meeting in 2010 she told the REC that she had worked with Parker* and that he was good: Extract of Minutes from South West 2 REC meeting held on 2 December 2010...
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    SMILE trial data to be released

    Great result, John. And great that it was a unanimous decision. Thanks for all your hard work.
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    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    Don’t hold your breath. Expect complaints to your University, ad hominem attacks and the destruction of strawman arguments, but not public debate. Also, do not underestimate SW. He may have many faults but he is no fool. If there are weaknesses in your arguments he will exploit them with...
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    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    Apologies for slow reply. And apologies if what I write has been said by others. I didn't have the capacity to respond as quickly I would have liked, or to read all the comments which have appeared since, but I wanted to respond because I think this is a really important issue. I don’t think we...
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    Cochrane ME/CFS GET review temporarily withdrawn

    I don’t think there needs to be a contract. As I understand, the legal requirement is for there to be a duty of care, for that duty to have been breached, and for that breach to have caused injury or loss. If someone could prove that they had suffered injury or loss as direct consequence of...
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    Trial By Error: Stupid Studies

    Reminder to anyone who may be able to attend that Prof Chalder is giving a talk on “Medically unexplained symptoms: my clinical and research journey over 30 years” on Wed next week (13th March) Visiting speaker: Prof Trudie Chalder (King’s College London) Chair: Prof Patrick Luyten Location...
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    The gut microbiome from patients with schizophrenia modulates the glutamate-glutamine-GABA cycle in mice (2019) Peng Zheng et al

    The gut microbiome from patients with schizophrenia modulates the glutamate-glutamine-GABA cycle and schizophrenia-relevant behaviors in mice (2019), Peng Zheng et al http://advances.sciencemag.org/content/5/2/eaau8317 Abstract: Do we know if anyone has tried transferring faecal samples from...
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    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    Historically, do you think the treatment of, say, people with MS when they were diagnosed with hysteria was ethical? Were the doctors making those diagnoses being reasonably diligent? I would argue that reasonable diligence would have required doctors to admit that they did not understand what...
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    What's behind ME allergies and sensitivities to foods, odors and chemicals?

    Not the symptoms you list as associated with mast cell activation. The main symptom I get is an increase in the discomfort in my face, which has been one of my main symptoms from the beginning. (I spend a lot of time with ice packs on my face to numb the discomfort.) Also, an increase in the...
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    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    Given the history of people being wrongly diagnosed with psychosomatic illness, both historically with illnesses which were previously misclassified and currently whith diagnoses that are missed, I am guessing that even those who believe in the existence of psychosomatic illness would concede...
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    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    I understand your point but I do think it matters: First, I’m not convinced that there is such a thing as a psychosomatic disorder, or that the diagnosis is ever helpful to patients. History suggests that it is used as a stopgap until a proper medical explanation is established. If the example...
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    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    Can PACE-type CBT and GET be described as a psychological and physical respectively? I know what you mean but are they not both psychology therapies intended to alter physical behaviour? To me, the interesting ethical questions are: 1) Is it ethical to try to convince patients that their...
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    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Yes. I would first write to or phone BBC complaints department to ask what has happened to your complaint. (If you phone make sure you get a reference for the call.) I would delay taking it to Ofcom until you have received a decision from the BBC. I had a similar delay when I complained to the...
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